Getting My Panic On

Parker’s cardiologist just called.  Yup.  Eight o’clock at night and this amazing man still takes the time to call.

He needed to update us on the results of Parker’s latest blood draws.

The update wasn’t so great.

For the third month in a row Parker’s BNP has gone up.  The BNP is  a pretty good indicator as to wheter his Pulmonary Hypertension levels are going up too.

His liver enzymes are up.  Due most likely to the medication Parker needs for his Pulmonary Hypertension.

Yesterday we received the results from Parker’s last sleep study.

Seems like Parker has a very bad air leak around his trach.  His trach needs to be enlarged and it needs to be changed out to what is called a cuffable trach.

Parker’s vent settings also need to be adjusted.  He simply isn’t getting enough oxygen at night.

That familiar feeling of fear has begun to set in again.  Pulmonary Hypertension takes lives.  Parker’s battle with this horrible disease has just been bumped up a notch.   Or 50.


  1. Melissa Sep 23, 08
  2. Christine Sep 23, 08
  3. Awesome Mom Sep 23, 08
  4. Scarehaircare Sep 23, 08
  5. dawnz Sep 23, 08
  6. Childlife Sep 24, 08
  7. Frog's Mom Sep 24, 08
  8. Harmonie Sep 23, 08
  9. Zoey's mom Sep 24, 08
  10. Kay Sep 24, 08
  11. Karen Sep 24, 08
  12. Laurie Sep 24, 08
  13. Barbara
    Sep 24, 08
  14. MomOf3(4ToB) Sep 24, 08
  15. Karen Owens Sep 24, 08
  16. killlashandra Sep 24, 08
  17. Bobbi Sep 24, 08
Read previous post:
Parker’s Pulmonary Hypertension: The Beginning

One of Parker's friends asked this question: I started reading your wonderful blog about a year ago now and in...