We are home from the hospital. Brave Hero is still sick, but we are (knock on wood) managing it all at home. I’ll update on Parker a little bit later today.
Recently my Twitter stream was overcome with truths concerning life with a child with special needs. I’m sharing them with you below, and invite you to add YOUR own in the comments section.
The school district’s Director of Special Ed and the State Director of Special Ed know you on a first name basis.
You buy don’t clothes with tags.
You had crash course in legislation post-dx. (Can I get an AMEN!?)
You’ve wanted to strangle a parent of a typical kid who says your kid just needs some discipline.
You consider internet friends you’ve never met to be some of your best friends.
Your kid has been on almost every med known to mankind.
Your twitter friends understand you and your child better than your local friends and family.
You know what day of the week it is by the professional you have an appointment with.
Your child only eats one color of food.
You secretly smile when your kid gets into age appropriate trouble.
You decorate your house for Christmas weeks early because you know your odds of being in the hospital over the holidays are sky high.
You have several complicated locks on your doors/windows as well as alarms to stop your child from getting out.
Your kid just dropped a grape and now the ENTIRE day is ruined.
You pray your typical kids don’t grow up resenting all the time you spend with their special needs sibling.
You live at the end of a bungee cord.
You can’t die. EVER.
You know what Happy Dancing is really and truly all about.
Your child has taught you more about love life and what truly matters, than the other way around.
You wouldn’t change your child for the world- but want often to change the world for your child !