They rushed to get Parker’s genetic testing back to us before the long Thanksgiving weekend. Even though I repeatedly told them that I already knew Parker had Down syndrome, they felt that it was important we had it on paper signed by someone at a nearby lab.
Since Parker was still in the NICU when the testing came back it was simple to meet and get the details of Parker’s extra chromosome. They only thing I asked was that they not make any comments about whether they though Parker would learn to do things like read or recognize numbers or hold a job.
This, of course, was back before Pulmonary Hypertension and it’s associated fears were embedded in my heart. But I digress.
They young social worker looked at me and told me that genetic tests couldn’t determine what Parker could and couldn’t do, but I’d heard enough to know what many thought a child with Down syndrome would or would not be capable of, and I reserved the right to realistic dreams based on Parker’s individual reality.
It was one of the best decisions I’ve ever made. What you don’t know can sometimes serve you well.
I don’t allow myself to compare Parker to other kids. Not typical kids or other kids with Down syndrome. Parker’s education has been based on hard work, lots of repetition, prayer and, yes, sometimes tears.
I don’t hold Parker up to someone else’s achievements, and on the flip side, I don’t hold him down to anyone else’s achievements either.
We’re on this journey together me and this Hero of mine.
Quite frankly I’m thinking that only the sky will be our limit. But who knows? Maybe we’ll even blaze a trail past the clouds all the way to the stars.