Just when we thought we were in the clear and had a bright window of hope concerning Parker’s health care, yet another bomb lands squarely in our lap.
When they did the lung washings on Parker they discovered iron in the white blood cells found there. Somehow blood has gotten into Parker’s lungs. There are a couple of theories as to how this could of happened. The one that has rocked our world comes from Parker’s cardiologist.
It seems that kids with Pulmonary Hypertension are at risk of having the vessels in their lungs close off and shut down……….causing bleeding in the lungs. A person can live a long life with just one vessel shutting down. But too many vessels shutting down is fatal.
So tomorrow Parker will undergo a sedated echo to get a close look at his lungs and see if this is indeed why there was iron (from blood) found in them. The ususal people who sedate kids for echoes refuse to touch Parker with a 10 foot pole because of that new trach. So Parker will be transferred back to the PICU and this procedure will be performed there.
I am totally devestated. I allowed myself to start hoping that we had been given a new chance to help Parker get healthy and here we have been presented with a potentially fatal curve ball. I am totally and overwhelmingly sick to my heart right now.
Would you please pray that Parker will make it through the sedated echo safely tomorrow.
And would you especially pray that the results show that Parker’s lungs are healthy and that any changes from his base line won’t have a negative effect on his lifeline.
I can’t believe we were so close and now this. I just want to go someplace and cry.
They also started Parker on a trial of Peptamen Jr. yesterday as it was felt that the Nutrimen Plus One might not be able to provide the protein Parker needs.
This afternoon there was a large amount of blood in Parker’s stool again. So off the Peptamen Jr. and back on the Nutrimen Plus one to see if that makes any difference.
Parker needs some serious prayers right now.