And BACK to the hospital we go……..

Parker has had a bit of a rough day today. He just threw up his last bolus feed all over Reed. :(

Parker’s crit is way down again. When you are low on red blood cells your heart has to work a lot harder. NOT good when you have pulmonary hypertension.

We will be admitting in back to PCMC tomorrow for more blood transfusions and some things to help his immune system. Reed and I are going to start donating blood to be reserved for Parker’s use. I’ll feel much better about all of these transfusions knowing that our guy is getting family blood.

I spent the day updating all of Parker’s medical information sheets. I typed him up a new sheet stating all of his meds, when they are given and what doses and in what concentrations he requires. Then I wrote up a new medical history for him. I included all of his issues plus the dates of all of his surgeries.

There is nothing that drives me more nuts than checking into the hospital and first having to give a history to the med student and then 15 minutes later to the resident and then 30 minutes later to the attending Hospitalist. It is much easier to just hand them Parker’s medical history and current meds needed and smile.

While I was at it I went ahead and updated Parker’s HUGE medical binder. I included all of his vent settings, his daily schedule and all his doctors telephone numbers. I also keep a calendar of appointments and therapies in this same notebook. I can’t stress the importance of being organized when you have a medically fragile child in your home.

This book could literally save Parker’s life in case of an emergency.

I’m way behind on emails and blog visits. I’ll catch up soon.

Please pray for this to be just an easy up and back trip. I’m worried about Parker’s emotional state and being admitted again. And please pray for this bug he has to be easily overcome. He’s been doing well these last couple of weeks. He’s been slowly gaining back his lost weight. He’s been looking so much better. We need to get him stronger!

I’ll leave you with a picture of our guy right after his bath. Gotta love that hair, eh?

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About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. Got Parker in my prayers. I hope it’s just a quick trip.

    Hugs,
    Kei

  2. Praying for our buddy tonight. Hoping you are all back home with good numbers very soon.

    Barb and Michael

  3. Sarah
    Twitter:
    says:

    Praying for you guys.

    Have they ever talked about IVIG, not that your crummy insurance would ever pay for it.

    Hope your out fast.

  4. Gotta love EVERYTHING about that kid.

  5. Thinking of you guys. Big hug to Parker fr Vince

  6. Oh precious, precious boy. Tammy, please know we are praying often here for Parker….and pray that this new round of transfusions can help him. I wish we lived closer as we would donate blood as well [I’m 0- a universal donor]

    Sending you lots and lots of love and support and kisses for sweet Parker.

  7. Im praying fro Parker! What a cute picture. I do love the hair!

  8. irene says:

    his nick name should be “spike”….so so cute…
    have you tried “intefiron”?..my son it helped a lot…
    hope you have a very short visit….
    give him a hug from his friends from nyc

  9. Angie says:

    I am so sorry to hear about Parker having to go back to the hospital. He is in my thoughts everyday.
    I hope you’re home again soon with a stronger, and healthier little man!
    And that picture? Priceless!!!!

  10. He is such a sweetheart in the picture – I hope it is just a quick visit and he is home quickly.

  11. Prayers as always! Lots of hugs coming your way too!!

  12. Love the hair! I hope it is a really fast trip for you guys. Prayers are coming.

  13. Praying so long and hard for our sweet Parker to have a quick stay and even quicker healing.

    Oh yes, loving the hair and my Parky fix.

    Hugs and kisses and love to all.

  14. Love the hair! Praying it is a short visit. Thanks for stopping by my blog and your sweet comment.

  15. Lauren says:

    The hair is adorable! I pray you will have a quick trip, and that he will be feeling better and home soon!

  16. Rebecca says:

    You’re a good mama. I hope Parker is better and home again before you know it.

  17. ((( ♥ )))

    Such a sweet picture! :)

  18. Ah Tammy. We’re praying that things settle down for Parker.

    That whole list thing is awesome. I know it makes me absolutely looney to have to go over things a hundred times- or correct the resident when they’re telling the attending the wrong info. It’s like- hey- do you need a pen? Take notes.

    You’ve got this thing wired.

    Let us know how things are going when you have the time.

    Love you- kelli

  19. Debbie says:

    yes, love the hair – only wish he was going someplace more fun with it! hope they fix you up and send you on your way. and you are so so smart with that notebook – at Binny’s pre-op for his tonsil/adenoid surgery, when the anesthesia resident asked me the same million questions over again, I kind of *snapped* at him “why don’t you just look in his files?” i hope some resident came up short against your notebook of power today! and that you are home before you know it!
    Debbie (Binny’s Mom)

  20. Prayers, Prayers and more Prayers!

  21. Debbie from South Georgia says:

    Praying really hard for Parker in Georgia!

    Hope he is as perky as that hairdo real soon!

  22. Praying for you little guy and for you for peace and strength. You are such a wonderful Mom and you are right, love that hair! ☺

  23. Love that hair! Praying for his health! Don’t you just love that admission forms usually just have one line for previous surgeries ;)

  24. LeeJo says:

    Sending lovin’ and prayers to that little dude with the best hair on the web.

  25. I’m sorry to hear Parker had to go back to the hospital, praying hard for him right now!

    Love the pic – he looks like he’s saying “another pic mom?!”

  26. Wow, you are really on the ball and I know it will save you a lot of headaches and also help the medical staff. I’m praying all is going well and Parker is home soon, gaining weight and strength!

  27. Tricia says:

    You guys are in our prayers.

  28. Oh, for heaven’s sake, I hope it’s a short visit. We do pray for parker, and for you, Tammy.

  29. I hope he’s feeling better soon!

  30. Thanks for stoppin by girlie :0)

    Ahhh yes lets both say it together…
    ~~Vanc is our friend!~~ hehe

    I want a uniform how bout you?? The ghostbusters get one so why not us?? We are afterall the resident “Bug Busters!” :0)

    Praying your stay will be as short lived as ours was! Smoochies!

    Trina and Jophie

  31. Terri says:

    Love the hair, Parker!

    Praying for a quick trip!

  32. I hope everything is ok. We have been praying extra hard for Parker! Please update soon and let us know that he is alright. *many internet hugs from Parker’s fans*

  33. Well wishes and prayers sent your way!

  34. Hope all is well today. He is always in my prayers.
    I think I will go donate some blood just cause I am thinking about him…sending hugs and kisses to the cute man after his bath!

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