Yesterday we took Parker to his new Pedi. Getting ready for the trip took longer than the trip itself. Cause if you want to travel with Parker you must first grab your:
Your FULL SIZED, weighs more than Parker does, Pulse Oximeter. Because, you know, your insurance company SUCKS.
Your Super Duper Snot Sucker. Your bag of Emergency Trach Supplies. And your diaper bag.
You lug all of this, along with Parker, to your appointment.
Then you come home in tears after you discover that Parker’s crit has fallen from 45 to 33.5 since you brought him home from PCMC.
I received a letter in the mail from the surgeon stating that they now believe the only way to reverse the bleeding issues of Parker’s stoma is to reverse it, or perform the PSARP. But there is no way Parker could survive such an invasive series of procedures.
So, once again we are asking for prayers for Parker’s health. For him to gain weight. For the bleeding from his stoma to cease. And for this trach to work it’s magic and help reverse Parker’s pulmonary pressures.