Traveling With Parker

Yesterday we took Parker to his new Pedi. Getting ready for the trip took longer than the trip itself. Cause if you want to travel with Parker you must first grab your:

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Oxygen Tank

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Your FULL SIZED, weighs more than Parker does, Pulse Oximeter. Because, you know, your insurance company SUCKS.

Your Super Duper Snot Sucker. Your bag of Emergency Trach Supplies. And your diaper bag.

You lug all of this, along with Parker, to your appointment.

Then you come home in tears after you discover that Parker’s crit has fallen from 45 to 33.5 since you brought him home from PCMC.

I received a letter in the mail from the surgeon stating that they now believe the only way to reverse the bleeding issues of Parker’s stoma is to reverse it, or perform the PSARP. But there is no way Parker could survive such an invasive series of procedures.

So, once again we are asking for prayers for Parker’s health. For him to gain weight. For the bleeding from his stoma to cease. And for this trach to work it’s magic and help reverse Parker’s pulmonary pressures.

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. You give WonderWoman a new name.

    As always, prayers for adorable Parker. :)

  2. Praying always.

    You know, Tammy, have you ever thought about selling ad space on the blog? With the number of comments you get, I would think your readership is pretty high, and clearly many of them are parents, and often parents of children with special needs. There are companies that cater to these people, and would like to advertise to them.

    It’s just a thought, an idea that wouldn’t cost you anything, and bring in a little something extra every month without you having to do much.

  3. Im praying for your little guy. Is there any way your Pedi would make the trip out to your house, knowing that you have to bring all that equipment with you. Maybe she would be willing? I pray she can, it would help out im sure…

  4. Megan says:

    Prayers always.

  5. Praying. This little boy is touching so many lives. But my prayer is that his may continue and that he may thrive.

  6. Melissa & Garrett says:

    Oh, Tammy…. We’re always thinking of you guys. I wish I were there to help you!

  7. Chris says:

    What can I do??? PLEASE tell me- I just want to help somehow….

  8. Rebecca says:

    Selling ad space on this blog is a REALLY good idea – I’m signed up for BlogHer ads, which apparently have the highest $$$.
    And praying, as always, for Parker.

  9. Man – you guys, if it’s not one thing it’s 100 other’s isn’t it?

    I am praying, always praying!

    I think ad’s is a good idea, lmk I would love to buy one! :) Anything to help little Parker! What a sweet sole he is, and what an awesome mom you are!

  10. wow Tammy that sure is a lot of stuff to travel with! I’m sorr you didn’t receive better news from the doc appt – keeping those specific prayer requests in my prayers.

  11. Tammy, I am praying for all of those things to happen and happen soon. I am so sorry you have to lug those huge pieces of equipment. There aren’t any nice words to say about your insurance company. It leaves me speechless.

    Hugs and prayers…always. ox

  12. Again, hugs and prayers. Can I help in anyway????? Please email me and let me know okay?

    I say the ad thing is a good idea too!!

  13. Tammy, as always we are keeping your precious Parker in our prayers. I wish I would have a million dollars so I could send you some. HUGS!!!
    Katrina & Brant

  14. irene says:

    be strong my friend….our thoughts are with you…
    maybe get a second or third opinion….we allways do with our son Jamie….
    can we help??? what do you need..i know a wheelbarel ar a 4rd set of arms…anything else…

  15. You really deserve a letter with some good news.

    I’m sending more prayers for Parker and for you as well.

  16. Oh Tammy, I’m praying for you my friend.
    love,
    Annie

  17. Everyday I check on Parker and family, even tho we’ve never met, Parker has made his place in my heart, we will send extra prayers for your too cut boy:) Plus Sydney (DS) sends kisses his way!

  18. I wish I could carry some of that weight for you… and I’m not just talking about the equipment. You’re always in my prayers.

  19. Always hoping things will turn around for Parker…I don’t know anyone who deserves a break more than the Hodsons!

  20. Oh, I will be saying special prayers for Parker! You hang in there, okay?

  21. LeeJo says:

    Upholding Parker and his family in prayer always.

  22. Oh Tammy,,,,I’m so sorry to read that bit of news. I have been praying so hard that his crit would improve, and your damn insurance company would come to their senses.

    Sending you all of our love and positive thoughts and prayers.

    Peace and love, Tara Marie

  23. Tammy – we are keeping Parker in our prayers. We have lost way too many cuties this week, and we’re not giving Parker up ;) Praying that his weight, his crit, and everything will improve. I’m sure this new ped. will be great for your cute boy!!!

    I’m thinking of you – I’d call if I thought you had any time to talk! Call me if you need anything!!!

    Hugs and prayers for Parky!

  24. Michelle says:

    Tammy – we continue to pray for Parker and your family. I am in awe of everything you have to handle yet still manage to keep your grace. You are an inspiration to so many. We will never stop praying and beleiving!

    Hugs

    Michelle (mom to Matthew)

  25. Will keep you and Parker in my prayers. And that’s alot of stuff! I hope you don’t have a compact car!

  26. Tammy – you’re never going to have to worry about relief society arms again ;) Seriously though – keeping Parker in my prayers, as always! HUGS!!!

    p.s. I tagged you for the name meme – see my blog :)

  27. I know this is so heartbreaking but know that so many are praying for not just Parker but for you and your entire family.

    God Bless!

  28. you are constantly in my prayers. oh LORD please let this little boy gain weight. Father Daddy heal this child.

  29. Just stopping by to let you know I’m thinking of you!
    Love, Kei

  30. WOW. I read the entire blog (yes it did take a bit of time). What an amazing mum you are! I’m so inspired. The love and dedication you have for your son is overwhelming. You are definately on my prayer list now, and I really wish I lived near by, I’d love to give you some respite, but as I’m in Australia, I don’t think that will happen soon.

    Who can I write to about your insurance? I’m disgusted with what you go through during your hospital stays, and that the cost is on your mind when your son is ill.

    Christy :)

  31. Just waving again and hoping Parker, you and the crew are adjusting and maybe sleeping a little. ox

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