Tracking Health Patterns

I have the medical binder for Parker, complete with pages of history, meds, vent settings and the like.  Now I’m taking notes on a daily basis in my quest to keep Parker healthy.  Tracking health patterns can help prevent problems before they get out of control.

 

large grid calendar

I wanted a simple system that I could look at ‘at a glance’ that would enable me to see any patterns that may be emerging in Parker’s health.

For example, we know that when Parker’s heart rate goes up he’s getting sick.  But I often don’t recall exactly what day his heart rate may have started going up or how high it’s been cycling.  Recording this on a daily basis is a great help in tracking health patterns.

 

A calendar page

Or there’s the poop patrol.  When you have a former IA kid who now also has ulcerative colitis, knowing when he pooped and what it looked like is important.  (sorry if that’s TMI, but I’m just keeping it real)  Yup, poop also has it’s own pattern that needs to be tracked.

It’s handy to have a quick way to view what’s gone into Parker’s blenderized diet every day.  This let’s me use both his diet and his poop patrol recordings to see any patterns in constipation or if perhaps a certain new food isn’t agreeing with him.

 

a perscription bottle

I can list exactly when I need to call in refills.   I can refill about 7 days before the last pill, which allows me to be able to build a small stash of meds in case of an emergency?  Do you ever get nervous about what would happen in an emergency and your kid couldn’t get his meds?  I do.  All the time.

There are only so many BIG things you can do to improve the heath of a medically fragile child with special needs.   Then you have to move to managing the smaller things and making the most of tweeking those. Tracking health patterns is actually more important than it may sound.  Small things often turn into big things, and that is what I’m trying to prevent here.

How do you keep medical records for your child?    How do you mange the small things in order to prevent them from turning into big things?

 

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. you’re doing great at staying organized! i should follow your lead

  2. I love this idea! I have so much paperwork for Matthew, I have no idea what to save and what to shred. I’m drowning here!

  3. I would actually recommend for you to use a 24 hour nursing flow sheet, like those on medical records. You can keep it on a clipboard somewhere handy and then just jot down HR every 8 hours, BM’s, etc. The docs would love it if you had this sort of thing for them to look at. You can find one on the web, I’m sure, but I’ll look and see if I have any I can email to you, too.

  4. I keep everything in a notebook.. Feedings, when and how much he ate and bowel movements. Or the lack there of for the last 2 days!!! Fevers/colds/allergies.. I started it when he was a newborn to just keep track. I just kept going.. Now his therapists/doctors are glad. So much easier to see what is going on…