Medicaid and my medically fragile kid.

Last week was the big Trach/Vent Clinic where we get to see ENT, Pulmo, a Developmental Doctor and a RT.  It’s a long day but it’s worth it.  A couple of things that happened though, made me wonder about the future of Medicaid. We don’t usually see Pulmo at Primary Childrens Hospital.  Trach/Vent Clinic kind… [Continue Reading]

Watching Your Health Care Float Away

It’s going to be a squeaker, this Supreme Court heath care decision. It doesn’t matter if you support health care reform or vehemently curse it’s existence. There are going to be consequences if it’s repealed.  Consequences that will be felt especially among some of the weakest in our midst:  medically fragile kids with special needs…. [Continue Reading]

The State of Illinois and the lives of medically fragile kids with special needs.

We’ve all had the experience of needing to cut our household budgets.  We go, line by line, over each dollar spent and where. We put that new pair of shoes off until later.  The pair we have now will last a few more months.  Who really needs this many television channels?  Do we really need… [Continue Reading]

Making Medicaid More Transparent: A Question From A Utah Legislator

I was asked to get opinions on this idea by a Legislator.  I will be sharing your comments with this Legislator, so now is your time to allow your ideas to be heard.  When struggling with accountability within the welfare system the lack of transparency (where the money is going and on whose behalf?) makes… [Continue Reading]