Special Needs Massage Therapy

I’d been wanting to get Parker hooked up with someone experienced in special needs massage therapy.  Interestingly enough, in the state of Utah kids on regular Medicaid waivers are covered for special needs massage therapy.  Kids like Parker who are on a waiver.  Not so much.  Don’t ask why.  I’ve given up trying to understand […]

Dreams Don’t Work Unless You Do

Dreams don’t work unless you do.  I found this quote by Maya Angelou a few months ago to send  with my son, Rigel as he worked to prepare to serve a mission for the Church of Jesus Christ of Ladder Day Saints.  Such a simple thought made such a deep impression as I continued to […]

Medically fragile children.

I can’t even count all of the times we’ve had to pull Parker out of cracks that could have easily cost him his life if Reed and I hadn’t been diligent and the Spirit so adamant in  demanding our attention. It’s a common pitfall, this falling through the cracks by medically fragile children. When Parker […]

Cardiology Appointment or I hate Echoes

Tuesday is Parker’s  cardiology appointment.  We LOVE Dr. Day, but we don’t necessarily like having to actually see him, if you know what I mean.  Dr. Day has taken excellent care of Parker when other doctor’s have shrugged their shoulders and walked away.  It was Dr. Day who finally believed us when we told him […]

What would you do if you weren’t afraid?

What would you do if you weren’t afraid?  If you could transform your fear into strength and get on with your dreams, what would be the outcome? Being afraid, truly afraid,  wasn’t a part of my life until I heard the words Severe Pulmonary Hypertension spoken the very first time.  Up until then my thought […]

An Echocardiogram and other terrors.

I think I’m doing pretty damn good.  Parker has a sedated echocardiogram on November 12th and I have yet to hyperventilate myself into an oblivion. That’s because I’m making Reed go up this time. Yeah.  I wish. I know.  An echocardiogram is a non-invasive test.  It’s not that Parker is in any danger.  He’s sedated […]