Prom and a Prayer

It seems like just yesterday that this young man was just a kid. Deep down inside I think he still is. But shouldn’t there always be a little bit of a kid in all of us? Friday was Prom.  He and the beautiful young lady next to him had a fantastic time.  It wasn’t that… [Continue Reading]

How to tell when a Brave Hero is Sick.

Knowing how to tell when a Brave Hero is sick is pretty easy. It’s not the fever. It’s not the snot you find all over your clothes. It’s not the sleepless nights. It’s not the whining. Nope.  How to tell when a Brave Hero is sick has nothing to do with any of the above…. [Continue Reading]

10 tips for dealing with chronic illness.

    Let’s face it.  For those of us who have kids with special needs AND chronic illness, there are some days you need a mental health moment.  Or a zillion. Just keepin’ it real. Lori Rappaport, PhD., has put together 10 tips to help cope with the hard days, and celebrate the triumphs.   … [Continue Reading]

Behaviors of the concerning sort.

We’ve noticed some behaviors our Brave Hero is sporting lately that are a bit concerning. Little things, that are at the same time big things. Like Parker’s car seat.  Parker LOVES to go for rides in the car.  I used to feel guilty seeing how excited he was to get into his car seat, with… [Continue Reading]

Life in the Medically Fragile Lane

I think sometimes people raise a mental eyebrow when I tell them that Parker is a full time job. An often exhausting full time job.   I create med and feeding lists each month.  Yup.  They change that often.  Putting together  a new one each month also allows me to go back in time and… [Continue Reading]

Shinning up my countenance

The other day I was talking with a someone about a mutual friend.  This person made the comment that our mutual friend had totally  turned around her countenance after many of the worries she had been facing were beginning to work themselves out. The  next comment was how ‘we now needed to turn around YOUR… [Continue Reading]