The Day Before.

      A day before a surgery finds me trying to exhaust myself with cleaning, laundry, and anything else I can think of.  It works for me to do stuff that needs to get done while ensuring I’ll sleep well that night.  Over the years I’ve learned that it’s best if I don’t focus… [Continue Reading]

Aspiration pneumonia, blue food dye and one Brave Hero

    We took Parker down again for his blood work yesterday.  To make things a little more exciting we added on a chest x-ray too. Any night now and we are going to look over and discover Parker glowing in the dark. The blood work came back looking beautiful with a BNP level of… [Continue Reading]

Pneumonia Update: Sunday

The Update: So far, so good…….we’re  managing at home.    Fever is still spiking.  The Moltrin helps some.  The Tylenol does nothing.  LOTS of sleeping.  Except between the hours of 3 a.m. and 5 a.m.  sigh. Between this and the tummy issues Parker’s been experiencing, our Brave Hero is down 2 solid pounds.  You can… [Continue Reading]

Help me sort this out?

One of the hardest things about being the Mom of a medically fragile child (besides trying to convince your local Legislative Representative that more cuts to Medicaid Waivers will wind up killing your kid) is trying to discern the path to follow and decision to make concerning medical treatment. Parker has gained enough weight to… [Continue Reading]