It looks like I’m taking a bit of a bloggy break without even having planned one.
huh.
Me not on the computer. This is a first.
Anyone seen any pigs flying lately?
Things around here have really picked up. The garden is starting to come on and it’s time to crank up the dehydrator and get the jam pots a bubblin’. On a week or so I’ll be canning up the green beans we planted in the Spring.
We have FIVE birthdays in July. Lots of celebrating. Lots of memories to be made.
I still haven’t heard when Parker’s heart cath will be rescheduled for. I know it will be in August. But no date yet. I’ll be so glad when this is behind us.
Parker has picked up double ear infections AND a sinus infection. And the rest of us are dealing with allergies this year at levels never seen before.
On the exciting front (!), Reed and I spent Saturday cleaning out our storage room. We hucked about half of what we had stored down there. I’m loving going downstairs and just standing in the door way drinking in all the newly created empty space. Have I ever mentioned how much I adore empty space? I was brutal with my holiday decorations and other stuff, weeding out and then keeping only what I love.
I’m not going to lie. The older I get, the more I adhere to the belief that less is more. Much more.
Our night nurse crossed the final line the other night and I’m meeting with a new nursing company this week. I spent so much time worrying about what would happen if she lost these hours with Parker. I know finances at her house are tight.
But I woke up Sunday morning to a SICK kid who had been allowed to go without ANY humidity/moisture on his trach mask with the compressor blowing and a broken humidifier that this nurse decided ‘to let me deal with because she’s not very mechanical’. Parker’s trach was so full of solid mucus I’m not sure how he was even able to breathe. I had to change out his trach before I could even do his breathing treatments.
Breathing treatments that this nurse also choose not to do, btw.
This nurse could have switched out humidifiers as there are two in Parker’s room. She could have simply put Parker on his trach nose too. But instead she just sat there and did……nothing.
And suddenly it dawned on me how stupid it was to worry about the finances of a nurse who couldn’t take the time to even ponder my son’s lung health for who knows how many hours.
History. That’s what this nurse is.
I have so much to share with you. I’m taking pictures and jotting down notes. Life has been good.
And for that I am so very grateful.
You need a nurse who cares enough to take care of the little guy. Not just sit there.
There is so much she could have done, including come and gotten you! That is just not acceptable. I really hope you can get good nurses. I am so grateful for mine. Praying he feels better soon. Ear infections and sinus infections by themselves are no fun. Together, I can’t even imagine the pain.
Hey, I’m so glad to have come across your blog! I really like how fun it is!
Our Son Noah was born with Down syndrome on Dec 15, 2011 and it’s been a fun adventure! We do a daily 1 minute video showing off his life every day on http://www.noahsdad.com — Hope to connect with you guys!
-Rick
Noah’s Dad
We are praying for you all, that you get a good nurse.
Ohh man that is a lot for little Parker’s body!!!
I must say I am glad to know we are not the only ones suffering with allergies. THEY HAVE BEEN CRAZY, especially this time of year. I am sorry you guys are stuck with the rudeness of allergies too!
As for the blogging breaks, it is sometimes needed huh? Especially when you don’t even realize it, it can feel a little nice!