Parker decided that last night would be a great night to sport a fever of over 103. And if that wasn’t enough, he figured throwing in a sky high heart rate would really sweeten the deal.
Poor Reed. He was on Parker Patrol last night. And was up All. Night. Long.
He’s having a better day. But last night was rough.
Two of Parker’s older siblings are also sick with fevers and sore throats.
Sharing the love….and germs.
Luckily we had been given a powered antibiotic that we just needed to add water to for just this kind of situation. So we started him on that. Our local emergency room takes one look at Parker and tells us to head up to PCMC’s emergency room. Uh. Thanks, but no thanks.
Tomorrow we will be sending Rigel and Kensley down for strep tests. Parker has an appointment with his ENT tomorrow anyway so we will fill him in on the details and see if we need to make any changes.
On Tuesday Parker has an appointment to see his surgeon to schedule his first PSARP surgery. I won’t even go into details as to what will be done to Parker’s poor little tush. It makes me want to bawl. I remember literally gasping when I was first shown pictures of what his bottom would look like after surgery.
I know his surgeon will want to schedule it ASAP, but first Reed and I have to figure out how to pay for the gas for several trips up and back, plus the expenses of having me stay up there for a week.
I am hoping that if I bring up some fresh fruits and veggies and stove popped pop corn, that will help me stay within my WW points each day. It is going to take until October/November to even come close to making goal, so I don’t want to set that back even longer.
But as rotten of an experience it is for me to do a stay at Primary’s, it won’t be anywhere near as miserable as it will be for Parker. This is an awful procedure for a kid to have to go through. Plus there are about 8 weeks of dilations after his tush heals. And the surgery after this one will most likely be worse. My heart hurts for our Brave Hero.
I’d like to try and stockpile some new and fun things for him to do while he is healing. (This is going to be a long healing process.) Books, Sesame Street DVD’s, Signing Time DVD’s etc. Maybe a new drum for him rock out on. He loves making Mom nuts with his ‘music’. oy!
I was hoping that yard sale season would have stared before this surgery so that I could have scored a few fun things for him that way, but the timing is going to be off. Our thrift shops here stink. And, I don’t know about you, but Ebay isn’t what it used to be either.
Maybe Criagslist? Or then again there is always Grandma. 
But I’ll figure out something. Cause, you know, I’m the Momma and it’s my job.
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I’d try Freecycle.org. I bet that you would not have any trouble getting new stuff for Parker for free.
I’ve been praying for Parker for almost a year. I wish that I could help you financialy, but I can’t. I’d love to send him some DVD’s or books. We have way too many. Let me know if I can do that for him.
I 100% agree with freecycle – just talk to the owners of your yahoo group, it’s also a great way to get rid of stuff you just dont need/want anymore.
Parker as well as your whole family are in my prayers!
Praying.
We have toys that didn’t make the move in my in-laws garage that he can have. I can’t remember, isn’t there something about certain types of fabric or something that he can’t have? You’ll have to look them over and see if there’s anything you want. I can bring them to you when I come up in May.
Oh no, I am so sorry you have so much sickness in the house! Strep has been terrible this year.
Poor little Parker
PLEASE tell me what you would like for Parker for toys. I would love to send him so more things and this time I want to be sure I get what he would like and use. Also, I would like to have a special thing in my Etsy shop to help raise money for your trip and things for Parker’s surgery. I am not sure how to go about it but I am definitely going to do something!
I love you all and hope everyone feels much better soon!
Amy
Still sending up prayers. I hope you get some sleep tonight. Poor Reed. He certainly deserves Husband Of The Year, doesn’t he?
I hope your little guy, and your other kids feel better soon, and that no one else gets sick.
You can also search the yahoo groups for free stuff. I found two sites for my area that are similar to freecycle…people post the stuff they are getting rid of, and others email them to let them know they are interested in their stuff..just a thought.
Im praying for Parkers surgery, praying it will not be as hard for him(or you) as they say it will be, praying that healing will take place alot sooner than they say, praying for the Drs and nurses to take the best care of Parker.
I hope you have a great week.
Yep, freecycle for stuff! Poor little guy. I hope his surgery goes well.
Kay
I hope everyone starts feeling better and Parker is in my prayers.
hope all is better today! i have lots of extra trach supplies and oxygen stuff. email me and i will see what you could use if you want and get it to you!!! it is all brand new and never been opened. slbanks00@gmail.com
Poor Parky. Just take thing one at a time (easy for me to say, I know). Things have a way of working out…
Continued prayers for Parker and your family. If you need a lift me up during your hospital stay with Parker, one snack size peppermint patty is only 1 pt on WW. But don’t be like me and eat an entire day of pts in peppermint patties! Hugs to all of you. Terry & Noah
Ya know, I happened to wake just this morning thinking of Zoey and all her little friends like Parker that have to endure so much and that bitter feeling started to creep in. Then I took one look at Zoey she flashed me a smile and I pushed the bitterness away for the moment. Don’t get me wrong, it all just still really ticks me off ! However, Parker is such a brave hero indeed and his strength lends hope to so many of us. I would LOVE to send Parker A little something that he could have from a little “girlfriend” in California so PLEASE email me an address and an idea or two.Please!
Zoey’s mom littlewonders-heather.blogspot.com
You should set up a “wish list” for Parker on Amazon.com. I’d love to send some Signing Time–and it looks like lots of others would love to help speed his recovery, too!
I had no idea what PSARP surgery was. Then I googled it. I will most assuredly be praying for Parker and for his mommy too! You are BOTH hero’s in my books.
my kids and mom are keeping up on Parker too and have him, and you, in their prayers. A friend just had a baby with Down syndrome who is having a number of health problems, everytime I think of Abigail I remember Parker. Thats a lot.
hang in there, and I vote for freecycle too. You can get some great stuff from there and if people knew Parkers story I know you’d have offers by the dozen.
My first thought was “freecycle” but I see others have already suggested it.
Doesn’t sound like fun for Parker or you. We’ll be praying.
Lovin’ on you guys from a distance.
Tammy, if you get time, will you visit my blog? I just want to know if what I did is okay or not. I should have asked you first, lol!
Hi,
My Nmae is Kitawna I am a new mother to my beautiful son Tayven who is 6mo. old who also has Trisomy 21 and AV cannal heart deffect. I recieved a book from a close friend called (Gifts) and I read your story and was very touched. I too spend a great amount of time at PCMC we ccam here for Heart Sugery but during a Pre-opp his heart failed for 30 min. so we now are dealing with brain damage and working everyday with trying to get off the ventalator and he hope that a 3rd time will be a charm. Before I read Gifts I felt I was really alone with how I feel and think. If we could stay in contact it would be great.
I too will pray for Parker and you family.