Representative Carl Wimmer Gets It Wrong. Again.

Representative Carl Wimmer has published his  political position on Medicaid.  You can read it  on Carl’s political Facebook page:  Entitlement and health-care. I used to follow Representative Wimmer on his personal Facebook page.  But after accusing another legislator of lying to me, along with telling me to ‘make no mistake, I disagree with you on Medicaid’, Wimmer unfriended me.

Seems as though once you have proof as to what  Representative Wimmer  REALLY believes, he unfriends you.

Go figure.

In his latest declaration,  Wimmer is now (and trust me, this is NEW) all about allowing those who are now on Medicaid to stay on Medicaid.  And I quote:

Federal programs have perpetuated the need for entitlements, and have left many families with no other clear and easy choice but to be on government programs.


I believe as much as possible we should keep the promises made to those currently in the system.  People currently in the government system are there in large part because the government has corralled them there over the years.

This, boys and girls, is what is known as the ‘I’m running for Congress’ syndrome.  This is when a politician SAYS one thing, knowing he will vote as he always has, in order to get elected to the next tier. For Wimmer, the next tier is Congress.  Wimmer knows he has ticked off not a few families of children with special needs.  He’s pissed off a lot.  Enough to make that dream of his go bust. 

And make no mistake, Reed and I plan to be the ones to lead the ANTI-Wimmer for Congress campaign.

While reading further,  I noticed this within Carl’s musings:

“We have come so accustomed to these programs that once in a while I am told by people who depend on these programs, that prior to Medicaid and Medicare they or a loved one would have died from a lack of medical care. This is simply hyperbole and not true.”

Once again, Wimmer is clueless.

When I have made this comment, it is because prior to 1966, kids with an imperforate anus lived the rest of their lives with a bag glued to their sides.  Successful technology for PSARPs was non existent.

Prior to 1966, a child born with Pulmonary Hypertension died.  Not because there wasn’t a hospital to take them to, but because there was no treatment.

Prior to 1966 Parker would have died to to lack of medical know how.

Kids born with Down syndrome who had certain heart defects…..died.  There were no surgeries to fix their hearts.

The cost of keeping some kids alive blows away the ability of charitable organizations. Some. Not most. But some. Especially kids with orphan diseases. And kids on waivers.  Where these kids would have died prior to 1966, they can be kept alive due to modern medicine.  Very expensive modern medicines and surgeries.

Carl lists these reasons why health care is so much more expensive today than it was before Medicaid existed:

* People relied on themselves instead of government and others.

* People paid for much of their own health care from their own pockets.

* Insurance only paid for catastrophic care.

* Low-Income people received care based on medical need.

* There was no centralized federal or state health care plan paying for premiums to insurance companies on behalf of low income people.

* Everything cost less.


But one thing he fails to address is that new medical knowledge often costs more. Don’t believe me?  Ask the family of a child with an ORPHAN DISEASE.

It wasn’t until the PHEN-FEN scare 15 years ago, that pharmaceutical companies began really ramping up research into new treatments for Pulmonary Hypertension.  Not enough people had been diagnosed to make it worth it financially.  But get a whole new crop of patients and *ka-ching* suddenly it’s on big pharma’s radar.
But these advancements are often way out of the reach of even insured families today.  Modern medicine that, if you are a middle class family,  you don’t even qualify for help from the company with.

A popular Multiple Myeloma drug comes at an astronomical price.  Yet it isn’t even a new drug.  It was introduced a generation ago as a drug to deal with morning sickness.  What MM patients are paying for now is all the law suits that came when the drug, when used for it’s original intent, caused a lot of unexpected birth defects.

These are issues that Carl doesn’t understand.

Healthcare isn’t the black and white object it is trying to make it out to be.

And the reality is that when we go to a charity only based social safety net, there will be those that die. Maybe going to a government ran program drove prices up.  But do you really believe that removing the government will reduce those prices?  yeah.  Me neither.

Prices will remain the same.  And there simply isn’t going to be enough private donations to cover the new technology that keeps kids alive these days.

What’s truly unfortunate is that Mr. Wimmer chose to  ignore my offer for him to come to our home, meet Parker, and hear a real life experience of trying to keep a child alive in the state of Utah.

It’s a situation that you can’t totally understand until you’ve been thrown into it.  But at least maybe, just maybe, Wimmer would have had a better take on what our family, and so many other families, have had to do to keep their loved ones alive.


There is another discussion on Medicaid going on at Connor Boyack’s blog.  Pay special attention to Monte’s comments.  Welcome to my world, boys and girls.

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.


  1. Amen to that. Heck if my son and I had changed places he would have had a good chance of not being able to get or survive the heart surgeries that saved his life. It was only just barely in the process of being figured out and was available only in a few area. Research costs money, lots of money and someone has to pay for it and more often than not the cost is dumped on those least able to pay for it. I would not wish this on anyone but I bet if he ever had a kid with special needs his tune would change drastically.

  2. Wimmer is just clueless and stupid! He says medicaid is being abused, and that states are paying way too much for it. Which is true, but not from our children, from people that choose to keep having babies, won’t work and pay taxes, and want health care. These are the people that are taking money away from our children that really need the extra help. He really needs to take you up on your offer to come see Parker and all of his equipment, he has no idea how much these children cost!
    I have a friend that’s brother in law is on disability. Do you know why? Because he did drugs for so long that his body is toast! Hello! The state actually gives this man money because he destroyed his own body. What our boys wouldn’t give to have healthy bodies, free from pain. Makes me crazy!
    Lacey and Jax recently posted..Back to lifeMy Profile

    • I have to say, comments like this make me sad. I feel you’re doing the same thing Wimmer does–decide who is and isn’t worthy of affording medical attention–but you want your child to be included in the category of worthy. And OF COURSE he is. And OF COURSE Parker is. But I think EVERYONE is worthy of affordable healthcare, regardless of what their circumstances are. People like Wimmer are trying to get people to divide themselves and decide who is worthy or unworthy of being alive and its disgusting.

      Being alive and healthy is something everyone–even special neds kids, even drug addicts, even the unemployed, even undocumented immigrants–deserve. When the debate switches to which of those groups should get help and which shouldn’t the Wimmer has already won the debate by making people compete for scraps.

  3. Elizabeth says:

    I agree with Lacey & Jax. Why are they attacking our children? They’re not the ones who drain on the system, it’s the people that Lacey described. They could go out and get jobs and then they would get healthcare. My son is healthy *knock on wood* but it’s the Medicaid that pays for his therapies not his private insurance, the one we pay out of pocket for does not pay for therapy! So without Medicaid he wouldn’t get therapy until he goes to school and then it would be much less than what he gets now.

    I don’t know how you follow these politicians, I couldn’t do it. When there was an issue with our Medicaid, they made some cuts and cut therapy visits I am proud of how the moms in our state reacted, going to the town hall meetings and standing up to the Governor. It did make a difference and from what I understand the requests that were made were granted.

  4. Hi Tammy, I think you might be interested in reading The Innovator’s Prescription by Clayton Christensen. It’s an entirely new way of looking at the health care system and how it might be revamped in a way that would help Parker, as well as the rest of us.

  5. I think most people (& politicians!) don’t realize why waivers and Medicaid were initially set up for kids with disabilities. These kids quickly reach their medical ceiling as far as payment for treatment goes with traditional plans. ANY family would go bankrupt trying to pay for their care. Without these programs, many would be FORCED to institutionalize their children just to keep them alive. By using the waivers & Medicaid, we can keep them at home, where they belong and are loved, at a much lower cost to the STATE! Not to mention a much lower cost to our own hearts.

  6. politicaljules

    Big Pharma is a thorn in my side and one of the biggest problems we have with healthcare today. They are the elephant in the room that no one wants to see. They are gouging insurance companies and people with special health care needs. When they cleave onto a disease or condition, they work in conjunction with the FDA to do no less than mob like techniques to literally waste every bit of money you may have on lifesaving drugs you need. My daughter has cystic fibrosis, and I get chest pains seening how much her drugs cost. One drug that keeps her lungs open cost $2100 A MONTH!!! And that cost has doubled just since obamacare passed. They try to give some sad excuse about research and fda costs, but if you do the numbers and see that they have been reaping billions and billions from us, they are lying. Now a new drug coming out that is the best and newest drug to possibly cure cf is going to cost cf patients $200,000 a year. And you have to take it for the rest of your life just like the other drug that keeps her lungs open. Big Pharma was never addressed in health care and as long as they line the pockets of the politicians it never will be. And people like our family will suffer by loosing our insurance, our finances, our life savings and we will be forced into bankruptcy and into government healthcare. Thanks Big Pharma. Enjoy your yachts on the backs of my daughter and others.

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