And it was almost like a tragedy to me. Oh, how I understand these words. I remember the day they told us that Parker had severe Pulmonary Hypertension. It was truly the worst day of my life.
I HATE Pulmonary Hypertension. If you listen, this Mama explains that PH is progressive. Progressive. Especially if there isn’t a reason for the PH that can be addressed and thus allow the pressures to reverse.
There are those who have been blessed and their child’s PH has resolved. Then there are kids like Parker who’s PH levels are certainly lower after addressing his aspiration issues and upper respiratory issues and taking so many meds. We’ve yet to get to a point where we could cut back on Parker’s meds.
It’s one of the reasons I tend to freak each time Parker must go to a cardiology visit, whether it be an echo or a right heart cath. Because echoes usually turn into caths for us.
This why we named this site Praying for Parker. Because we knew that we would need people willing to pray and lend their faith to our fight of keeping our Brave Hero alive for as long as possible.
Parker’s pulmonary hypertension pretty much rules our lives. It’s why Parker doesn’t go to school. It’s why he’s trached. It’s why he’s connected to oxygen 24/7. It’s why he’s on a vent when he sleeps. It’s why he takes so many medications so many times during the day.
Pulmonary hypertension is what makes it so hard for me to plan for a future.
It’s why we still covet your prayers.