So far, so good…….we’re managing at home. Fever is still spiking. The Moltrin helps some. The Tylenol does nothing. LOTS of sleeping. Except between the hours of 3 a.m. and 5 a.m. sigh.
Between this and the tummy issues Parker’s been experiencing, our Brave Hero is down 2 solid pounds. You can see from across the room. Nervous making. Very nervous making.
We are grateful to have been able to stay home and take care of Parker. But Reed and I have both had thoughts of spending another Thanksgiving at PCMC. Not exactly the vision of holiday sugarplums we’ve been dreaming of.
Our family Motto.
What makes me a little nervous is that we had hoped the epiglottal fold over surgery Parker had done would help with his aspiration issues. His poor lungs don’t need any extra stress. Stressed lungs and pulmonary hypertension do NOT a good pair make.
It looks like we’ll continue our tradition of hunkering down at home during the winter. This kid still gets too sick too easily. For now, I’ll just have to keep believing Parker’s day to explore the world will indeed come.