NOT exactly the news we were hoping for…….


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About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. I have no wise words to say except for tht we think of you all. you will get through this, I know. Parker is an amzing little kid and he is strong!

    Big big hugs from Austria

  2. I am lifting up Parker in prayers today. I wish i could help in some way other than prayers, but please know that I am always thinking of you and Parker, and praying for your family.

  3. Oh Tammy, lots and lots of prayers coming from us! Keep us updated!

  4. I'm so sorry that the news wasn't better for Parker. I think of him so often and he will continue to be in my prayers!

  5. Debbie from South Ge says:

    I will certainly be Praying for your sweet precious Parker.

    I am just wondering…Is there not some sort of humidifier, that could be run in his room in addition to his machine that would loosen the mucus in the meantime? I am just thinking of the old fashioned humidifiers that my mom used when I was a child??? Just a thought.

    GOD WILL FIND A WAY!

    Huggs to you all!

  6. Rebecca says:

    I'm so sorry for all of this. As always, your family and Parker are in my prayers.

  7. I don't know how you stand this, Tammy. Your insurance company infuriates me and I don't even have to deal with them. What on earth is wrong with them!

    I'm praying. I've been praying for Parker since the first time I met you and him and I will not stop.

  8. Praying everything will be better for Parker and you.

    Mike

    http://somethingaboutparenting.typepad.com/

  9. I agree about the insurance co. infuriating! I too think of Parker often and share about him to others. I will put the word out of get praying asap. Keep us posted. Oh may I put Parker on our prayer chain? Especially for his cath. appt.?

    Peace Be With You

    Kim

  10. Oh Parker, you get better and quit making your momma so worried! HUGS!!

  11. Sigh. So sorry, and I will keep a good thought for Parker, and for you, for strength!

  12. Rebecca P says:

    Another sigh. We will be thinking of you and the amazing Parker here.

  13. Yet another sigh…I'm so sorry the news wasn't better. Precious Parker remains in thoughts and prays at our home, as does your entire family.

    The frustration of dealing with that insurance company is definitely a stress you do not need at this time. I pray for strength for you.

    God bless.

  14. I'm sorry you didn't get great news from the echo. (Kayla is like that too – totally squirming around). I pray that the reason it was higher was because he was moving and nothing else going on with him. Parker is always in my prayers and he will continue to be with the CPAP madness (praying you won't have to pay out of pocket) and for the heart cath (Kayla had one done last Aug.)

  15. I’m so sorry you didn’t get better news. I’m thinking of Parker, and of your family.

  16. Tammy, you and Parker (and the rest of your family) will be in my prayers! Please keep us posted.

  17. Debbie says:

    I came to your site from Sarah’s and was reading about your CPAP problems. I am Resp Therapist and Sleep Tech and work in a Sleep Lab. I can help you with the humidified CPAP machine if you are still in need. If so please email me and I will explain. I do not want to post details but I know I can help you.