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You should be bitter…very bitter.
It is such a slap in the face. You do your best and it’s not enough, you ask for help and you have too much. It is a middle-class nightmare. It’s wrong and it’s sad and it’s unfortunately the way of life for too many…
Thinking of all of you.
I’m sorry.
I’ll never ever understand how, in the land of opportunity, something like this can happen, Tammy.
I don’t blame you at all for being completely beside yourself with frustration. It’s just not right.
I’m so so sorry you’re running into these unbelievable obstacles. It’s so wrong.
I wish there was even a single thing I could to to help you. All I can do is pray that one person, one single person somewhere who you encounter, someone who can actually do something, comes into your life.
I’mpraying specifically that you’ll finally find someone who has a brain in their head.
Yo uhave every right to be upset. These programs were designed to help people, and unfortunately don’t help the people who really need it. Does Parker qualify for his own SS check? My nephew is 7 ,he has downs syndrome, and he gets i think 400 dollars a month. How about asking your church for help? I know there are alot of people out there willing to help others, if they ask.
I’m speechless, but I want to comment so I can’t remain so
I”m so sorry this is all happening to your family. How unbelievably frustrating!!
I so sympathize with this situation, we have similiar issues. On paper hubby makes too much money but if you subtract our son Braden’s medical bills, and medication it is not so great, but on paper it looks good so therefore we don’t qualify for anything. It is very frustrating.
I would be bitter if I were you, too. But I am very glad for your honesty. I am praying not only for Parker, but for you as well. That your voice will be heard, too.
Cant you use what you own on his medical bills. That is what we have done cuase we are in the same boat. Our one shot cost 3 thousand dollars. And we get the shot till April. By spending down our 900 dollar portion of that bill we get medicaid for the month. From the sound of it you have plenty of bills to help with that spend down.
I totally understand your plight! Mostly because with Ethan, we have been there. Only Ethan’s formula is about 3,000. rather than three hundred.
Is your spenddown for traditional medicaid or medicaid D? There is a difference, and if your caseworker says there is no such thing ans medicaid D, then give me a call. 435 695 3192, the biggest irritation with medicaid is that no one ever seems to know what they are doing.
When you were denide Social Security, was it because of income? If they classified him as medically acceptable, you can use THAT classification to qualify for Medicaid D.
Now if the spendown is for Mediciad D… Then please call me again. *chuckle*
There are ways espeically for you to get formula & health care, from other resources.
Did you also know that you can use medical bills to PAY your spend down.
We used our NICU medical bill to pay for our 7000.00 $ spendown, and then Pennies by the Inch at PCMC covered our spendown for us, by clearing the medical bills.
Also, your mediciad worker was wrong about your son who is over 18. If you provide them with an avidavid saying that they are in high school, they HAVE to count him as a dependant. The problem with medicaid workers are Most of the Did NOT attend high school *smirk*
Okay so that was rude, but true.
There are a few specialists in the State of Utah who really know the medicaid stuff, I can help you.
I am praying for Parker! What a cutie!
*HUGS* Lis!~
Does he have a tube? I can’t remember. I have a LOT of tube supplies I would LOVE to get rid of!
Truly awful- I’m so sorry- it just isn’t fair.
Wow, Lisa M sounds like a good contact. Give her a call. Here in Idaho, I found out (through the school district) that our son’s diagnosis of ds qualifies him for a special “in” with medicaid … they will reimburse the school for speech and his OT … and it’s not dependent on parents income … just my son’s (which is zip). We’re now able to order his pullups through this program. Also, our HMO (at the time we were spending about $39 a can for pregestimil formula) would pay for said formula if child was solely tubefed. Our local group tried to fight us on this … but we appealed and got back payments. It’s a tough fight … your’s sounds extremely difficult. I’d check with the local schools to see if they are aware of any (seldom mentioned)programs you may not be aware of. Prayers and hugs ((())))
eeeek….. this ticks me off!!
Tammy – once again – I know how frustrated you are! Lisa M is a great contact, and she really does know her stuff – call her for sure
Her blog is always a great read too! I hope that she knows some in’s for you!
Hugs and prayers,