Medical Binders and the kid with special needs.

Our local children’s hospital is also a teaching hospital.  We would take Parker in for an appointment and the nurse would have a zillion questions for us to answer about Parker’s history.  Then a resident would come in.  Same questions.  By the time we saw the doctor we were tired of answering questions and just wanted to wring someone’s neck.

Photobucket

I quickly wised up and created a Medical Binder for our Brave Hero.

 

Photobucket

I keep all of Parker’s medical information (past and present) in this binder. The information I use the most I make copies of. It is so nice to be able to hand copies out of all Parker’s information rather than having to fill out forms or answer questions verbally.

Photobucket

During hospital stays it is nice to be able to hand out copies of Parker’s daily schedule, medication schedule, vent settings and phone numbers like pharmacy, cell phone, and pediatrician.    When things are stressed, trying to remember the dose and strength of a medication just makes things even more nuts.

I have a list of all the items I order for Parker on a regular basis, complete with their reference numbers.  Makes ordering supplies so much easier. 

I also keep copies of all Parker’s test results in his medical binder.   It is so nice to be able to whip out the latest copy of a test out and refer to it right then and there. Yes, they can look it up on a computer, but having a hard copy to refer to is awesome.

 

Photobucket

 

A medical binder, as Martha would say, is a good thing.

What are some of the pieces of information you always have handy for doctor visits and hospital stays?

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. Our binder has been such a lifesaver!! The palliative care team actually carried it around and showed some other moms last time we were in the PICU there. The medical home program here uses them too, so I’m going to combine mine with the one they gave me, making a super binder! Lol!

  2. I keep the most important info in a (now 11 page!) template that I update each time. I keep the most important stuff on the front page, like his current meds, vent settings, etc, and how to reach us. Then it’s all his docs (yeah, there’s a few) followed by his hospital stays. Like you said, it’s SO much easier than trying to remember dosages, etc when you’re stressing out. Hoping Parker is staying well!
    Rebekah recently posted..Haircut!My Profile

  3. Peyton’s isn’t in a binder but has similar information – medications, all specialists with their name, address, phone and fax number, dates of hospitalizations along with the reason and all her agencies (home health, dme, medical supplies). For all new doc visits we just hand them a copy to put in her file and they can refer back to. The other thing we have done is print off a list of the clinical symptoms of Peyton’s syndrome and which ones she does or does not have since it is so rare.

  4. What a great time saver and resource for everyone on his care team. I love the fun cover with his name on it too. Who said the binder needed to be all serious? I was wondering how often you update the information to ensure that it stays current? Kids grow and change so quickly that I would think you’d need to update items like the med list and schedule fairly often. You are the best advocate and caregiver for your child. Thanks for all you do!

  5. Awesome idea!! We do a similair thing for our kiddo for the exact same reason (teaching hospital and all).

  6. Lisa Bailey says:

    This is a great idea, you are always giving me new ideas for things! From cooking and stocking up to organizing thank you for blogging. Love coming here and reading about you and your lovely family.

  7. I am SO going to recommend this to ALL of my patients with chronic health issues! Brilliant!

Speak Your Mind

*

CommentLuv badge