Life. Updated.

 

 

 

Yesterday started with Reed telling me that we had a bit of a situation on our hands.

Oh, goodie.

The fan on our furnace….the motor……was shot. Without the furnace motor the air conditioning doesn’t work.

sigh.

With Parker, ‘toughing’ things out isn’t an option. Parker doesn’t deal with heat well. So Sunday morning found a repair truck outside our home.

Seeing that our house and the furnace are almost 20 years old, we are pretty blessed that things have held up as well as they have.

Reed was spot on with his diagnosis and $700.00 dollars later the air conditioner was blowing again (yay!) but the reality is that it’s time for a new furnace. (boo!) It always seems as though there is something that needs to be replacing. Hopefully this patch up job will hold out until we can save up enough to purchase a new furnace.

With my oldest son getting married, we’ve been playing musical bedrooms around here. Parker’s ‘safe room’ has been moved to the bedroom next door, and his old ‘safe room’ is now his homeschooling room. The Blue Eyed Girl took over her older brother’s downstairs bedroom.

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My sweet Mom made this possible. Parker’s old school table was simply a end table that had been painted white and turned sideways. It was a quick, cheap fix for a couple of years. He’s outgrown that table though and needed a bigger one. A real table. Thanks for everything, Mom!

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This is the view from the hallway doorway. Why I put two doors in this room I can’t remember. I think it had to do with thinking this room would always be my office where I could work as a tutor. I did tutor for a few years…until more kids came along. Man, I really need to take down that light fixture and spray paint it something other than brass. *shiver*

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This room has a teeny closet because of the extra door. (what was I thinking?) I’m using it for art supplies. I need to get in there and add a couple more shelves. One of these days.

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Our language and math stuff. Yes, I may have a problem when it comes to homeschooling stuff. I’ve purged my house like crazy, but I still have a ton of teaching stuff. And I actually use all of it.

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We left this monster in the home school room. It has a ton of storage and will be even more efficient as soon as I get the board painted and added to the middle for another shelf. It’s also too damn heavy to be hauling all over the place.

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We have a lot of books around this joint. Have I ever mentioned how much Parker loves books?

Speaking of the Brave Hero. We finally got the results back from all the blood they pulled out of him last week.

Parker’s SED rate is up and he is anemic. This basically tells us that Parker isn’t absorbing his food well and that he’s dealing with some inflammation, most likely in his bowels. Of course I could of told people that without having to suck half the blood out of my kid.

The anemia is most likely one of the reasons Parker hasn’t felt like doing much more than cuddling and reading books. It could also why he’s been so stinkin’ pale.

To make things even more exciting around here Parker has decided that a 4:00 a.m. wake up time is awesome. Reed and I disagree but have yet to discover a way to convince the P Man.

Our Pedi is calling up to GI right now. It’s time to get more proactive and get Parker back to his baseline. It’s been over two months and this Hero doesn’t have any more weight to lose.

Keep those prayers going, please?

PS: The powers that be want to see Parker this week to scope his GI tract. The only issue is that getting him in this quickly means that the procedure will be done by a Fellow and supervised by an Attending. Not so sure how I feel about that. Parker is too complicated to be used as somebody’s practice hours to graduate with.

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. We really need a new furnace too and don’t want to wait til it goes out :-( sigh. Hang in there… looks like a lot more going on for you guys too!

    • Tammy and Parker says:

      Right now I’m just happy for the air conditioning being back on! It’s been HOT around these here parts!

  2. Prayers continue for all of you guys!

    • Tammy and Parker says:

      Thanks, Jenny! Parker actually woke up looking and feeling better than he has in a long while. Maybe he’s (finally) on the mend! xoxo

  3. Sending lots of prayers to you guys, I know God is always beside on us and He always answers our prayers. God works in mysterious ways.

  4. I’m so glad you’ve got the A/C fixes again…but sorry it went out. I enjoyed the peek at Parker’s rooms and hope the 4am wake time is just a phase (and short lived phase). Thinking of you all.

  5. Lisa L says:

    Hi Tammy! Have they done allergy testing on Parker? I have had ongoing belly issues for years and my upper and lower endoscopies always came back fine (or close to it anyway). Ended up that I have lots of food allergies (turkey, chicken, beans, peanut, tree nuts and on and on) and they also determined that I have chrohns disease in the part of my intestines that can not be seen by regular upper and lower endoscopies (I had to swallow the capsule camera). I have ulcers in my intestines that were bleeding so much (along with a typical blessing due to having children that was bleeding) that I became significantly anemic and needed IV iron infusions (3 rounds of 4 sessions each) last year. Praying they can get Parker’s belly happy soon!