I know there are many worse things that Parker could have been diagnosed with last week. In the world of medically fragile children we’ve had our share of miracles.
I’m grateful.
I’m also feeling the weight of the world on my shoulders right now.
Maybe it’s just the way I process information. So thankful that something is treatable that I shove back the worry until I have the courage to process it.
Or until it simply storms it’s way into my heart and over takes me.
Life doesn’t allow me to live in denial for long. Which I guess with being Mama to Parker is a good thing.
I can’t say it doesn’t worry me. I can say I’m filling my prayers with requests that we can get things settled down and Parker can gain some weight. That healthy can replace the skin and bones a certain Brave Hero is sporting these days.
I keep telling myself that I can do this. I’m just waiting for that stubbornness of mine to kick in…..the bit in my mouth that allows me to buck off the fear and get on with the overcoming.
I’m not really a super Mom. I just fake it until I am finally brave enough. Until I have the strength to go toe to toe with the newest monster in the room and demand it’s immediate exit.
We shall over come.
It’s what Brave Hero’s and their Mama’s do.
PS: We are SO very close to providing Parker with a long term generator tied into our natural gas line. It dawned on me that not only do I need to have outlets in Parker’s new safe room hooked up to the generator, I need to have a few outlets in the basement tied in as well. If we had a long term power outage during the summer we would need to take Parker downstairs to the basement where it is always cool. I was also told that I could have a reserve of natural gas placed underground to use in case our natural gas connection was turned off.
If we are going to do this, I want to do it right the first time.
And we are absolutely going to do this.




Twitter: valmg
says:
That’s a great quote that really puts some things in perspective.
It’s usually my youngest son (the one who has Ds) that inspires me.
{{{HUGS}}} Hang in there, mama. You’ve got this. By the way, did you get the email about the photo shoot Thurs/Fri? Let me know. Love you!!!
Twitter: sugar_Loco
says:
That quote is so true. Just go through the motions and before you know it you’ll be looking back wondering how you did it all. You are a brave hero too!
Ok , i feel rotten, bc it has just dawned on me that little man has fallen off my blog feed. I’m so sorry I haven’t been here to check in on you all. BUT…I’m back..and he’s never left my prayers.
Michelle, no worries. Just add us back…….and share us with your friends maybe?