UPDATE: We spent an hour with Parker at Now I Can today. Of course the minute Parker walked into the joint he went into total whacked out sensory mode. It was awful. It was also an actual smack in the face reminder of the OT my son needs and isn’t receiving.
I filled out papers and Parker had the assessment. The PT did a series of pressure moves and Parker calmed down immediately. It was like magic.
The more we talked with the PT the more excited I was about trying to get Parker into this program. It was obvious that Parker would receive a couple of hours a day having his intense sensory needs met, and that made my heart soar.
But then, and this is going to sound nuts, but then I just felt off about it. Not that it isn’t a great program, because I think it is. But because I just don’t think it is $6,000 of a program for Parker.
Suddenly all I could think of were the families fundraising to keep their children alive. Families fundraising to bring a child home from an orphanage that would one day be sent to an institution. Families standing on the side of the road trying to get enough donations to feed their children that night.
I’m not sure how to explain it. I absolutely think that Parker is worth every penny this program costs. I know how hard money is to come by these days. Yet when I looked at this program closely and I thought of six thousand dollars, it just didn’t make my heart feel the happiness it should have if I were making the right decision.
Yes. I am weird. But I take every single penny donated to Parker very seriously. Every single penny has to be spent the best way possible.
I’m so discouraged that our school district puts so little forth in Parker’s behalf. I left the original comments to this post below. There are others who have or do live here and totally understand what I am talking about.
I’m angry I’m not able to provide enough therapy for Parker to be able to walk down a flight of stairs, or ride a bike.
I’m a pretty smart Mama though. I’m hoping I can teach myself how to teach Parker these things. Then I can thumb my nose at a system that is not only broken but takes out it’s issues on the weakest among us.
If I counted up just the days missed by the therapists assigned to Parker by our school district…….it would be a significant number.
If I allow myself to focus too much on an OT who waited two years to get Parker on a sensory schedule or has never even properly assessed my child in order for me to try and get more help at Primary’s……well, the anger doesn’t take long to come to the top on that one.
There is a slight chance (but not really, I’ve tried this before) that Now I Can could code things so that our private insurance would cover his sessions. I know better than to get excited about that though.
For those of you who have already donated, I refunded your money. Thank you SO much for believing in Parker. It means the world to me.
Tammy and Parker
Friday’s are the days Parker’s PT comes. She’s been working with Parker since he left Early Intervention. She told me that she won’t be coming to see Parker over the summer. He no longer qualifies for summer PT sessions.
If truth be known, he really no longer qualifies, as far as his school district is concerned, for her to come once a week anymore.
Shall we all pause for a moment of panic here?
No more physical therapy? At all? For a kid that can’t go down stairs by himself, run, jump, ride a bike, hit a t-ball and a thousand other things most 8 year old kids can do.
I’ve been tossing the situation around in my heart for weeks now. If Parker lived in most states besides Utah, he’d be receiving SO much more in the way of therapies. You know, the whole ‘if wishes were fishes’ thing.
In Utah you’re told to host a BBQ in situations such as this.
I’ve been looking into Now I Can, an intensive therapy facility. I’ve talked with them over the phone, talked to several other parents and therapists. We have an appointment to tour the facility today.
But the price.
$6,000 for four hours a day, five days a week for three weeks.
Go ahead. Take a minute to pick your jaw up of the floor.
It works out to what…….$100.00 an hour for intensive therapy. This intensive therapy also brings in a lot of the sensory input Parker seeks after, and we are seeing success with.
While we are there for our visit today I’m going to ask if we could perhaps do just two hours a day, bringing the price down by half.
Intensive physical therapy is a relatively new idea in the United States, but has been practiced in Europe for over a decade. This effective therapy involves performing exercises over an extended period of time — 5 days a week for 4 hours a day. Most clients visit Now I Can for 3 or 4 week sessions. Studies have shown that a 3-week session of intensive therapy helps a child realize the same goals it would usually take a full year of traditional therapy to achieve.
It’s humbling, this fund raising thing. I’d rather never have to do it again. But we’ve been committed to providing the best quality of life possible since Day One.
Walking down a flight of stairs. Running. Hopping. Jumping. Skipping. Riding a bike. Kicking a ball. All of these are skills a Brave Hero should have at his command, don’t you think?