We made it up to Primary Children’s hospital today with time to spare for Parker’s Upper GI appointment.
Reed gets a bit stabby if we don’t get some place early.
Unfortunately our appointment time came………..and went.
Having to wait over an hour for Parker’s turn to get his tummy filled with barium also tends to make Reed a bit stabby.
ahem.
Finally our turn arrives.
Wait, let me rephrase that.Â
Thankfully our turn arrives.
Because someone’s stabby was starting to get on my nerves.
Just sayin’.
Upper GI shows that Parker’s g-tube placement is perfect. This doesn’t surprise me because our surgeon is beyond the amazing.
The Upper GI did show that Parker was aspirating past his trach.
But the absolute proof that my kid has some pretty big issues with his feeds going in via his g-tube and out of his mouth and trach came while we were sitting in the Surgeon’s office.
Our sweet Brave Hero turned his head, looked his Dad straight in the eye and then proceeded to ‘urp up a big old mouthful of the barium that had just 45 minutes ago been administered through his g-tube.
Hello, proof positive that my kid has issues with aspiration.
I woulda’ taken that moment to stand up and yell, “See, I TOLD YOU SO!”, but stuff like that also tends to make Reed even more stabby, and I didn’t want to push my luck.
heh.
Unfortunately there is a really (realllly) good chance that the surgery for the Nissen which will take place on the 17th along with the stoma revision, Bronch, and tubes, will land us in the hospital over Christmas.
This of course would suck. Mightily.
But to find proof of something that could oh. so. help. the health of Parker’s lungs outweighs everything else right now.
I’m sure Santa won’t mind having to visit Parker in his favorite room on the trach pod rather than at home this year. Â Cause if there’s one thing I know, it’s our Hero has been an exceptionally good and brave boy this year.
*sigh* i’m so sorry. but, you’re so right….helping his lungs outweighs everything else. what a good mama you are. and yes, a good and brave little boy!
Your husband needs to learn to knit so that he can have stabby yet useful implements around for times like this.
It sucks that you will be stuck in the hospital for Christmas. We barely got out in time for Evan’s first Christmas only to be felled by a nasty stomach bug picked up at the hospital. Ahh the memories… I hope Santa spoils Parker rotten, he deserves it.
boo to christmas in the hospital, but I’m like you. . . when I’m going after something I don’t care what’s standing in the way.
Barium burp–ewwwwwwww
Sorry to hear the news. But your right, it is more important to correct this problem than be home for the holidays. We were actually in the hopital last Christmas Eve and planned on being there through the 26th or longer. But for some huge miracle, we got out late Christmas Eve.
Sorry you have so many procedures to look forward to. But, so happy that the docs are now on the same page as you and you’ve identified something that can help Parker. We understand how Christmas in the joint feels. Prayers for smooth sailing this time!
Why haven’t they done a nissen on him already? Well I guess we don’t have much room because they didnt do it with Jax g-tube, said he didn’t think he needed it. He waited until he vomited, aspirated, and turned blue. Then he did it. Nice.
17 till the 25th, it’ll be close. I think both times Jax stayed about 5 days. And that was starting feeds really slow because his tummy tends to shut down completely after surgery. We’ll keep our fingers crossed for out before Christmas.
Oh, and my hubbys the same way with appointments. Thats why I usually go alone 😉
Awe that’s too bad about Christmas. But glad to hear that you are getting what you need for your little cutie. I spent last year in the hospital for Christmas. Best wishes for a smooth surgery and quick recovery.
Ugh, so sorry about the timing of everything : ( I will be thinking of you all and hoping for a quick procedure and a healthy recovery.
((Hugs))
That stinks! I can’t imagine how nasty a barium burp would be. Poor little Brave Hero!!! Good news that you at least have the aspiration confirmed and can get that put to a stop!
LOL @ the comment about hubby learning to knit HA!
I am just glad that the doctor seen this. Maybe Mr. Parker will get the help he needs to correct the problem!
Much love and God Bless your family!
Kay
Poor little man!!! I will be praying for all of you. I can’t imagine how difficult it is for the whole family! Hugs.
Keeping Parker in my prayers!