Homeschooling my child with special needs.

We took Parker to school last week.  Not every day and not all day long.  Nope.  A couple of days and a couple of hours per day.  By Friday Parker was sick.  By Sunday he was sicker.  When my medically fragile kid gets sick during the healthy season, I know that homeschooling my child with special needs is the right choice to make.

Making the choice is pretty easy.

Making sure I have what it takes to provide Parker with what he needs to meet his highest potential is an entirely different thing.

going from the top dot to the bottom dot

I totally screwed up in the follow up and being on task with Parker’s fine motor skills.  I have a teeny window of time to try to make this up.

If Parker could go to school he would get one on one Occupational Therapy, group OT therapy, and help from a certified teacher in special education.

How do I counter that?

At most Parker will receive OT twice a month.  On the positive side, our school district, because of all the cuts being made in special education due to the sequester, has decided it’s cheaper to hire a new OT than have Parker’s current OT, and the other district OTs travel out of their territories.

homeschooling a child with special needs

Starting in July we’ll be able to take Parker up to receive a little bit of help in the areas of OT and PT from Primary Children’s rehab.  I know he will at least receive 10 sessions of each.

It’s something.  And I’m thankful for what little bit I can provide for this Hero of ours.

We were contacted about the possibility of Parker being gifted an adaptive bike.  It’s still in the hopeful stages.  I do know that an adaptive bike will provide gross motor therapy in a fun, engaging way.

From now until my Mom’s next knee surgery in October, she will be working with Parker on his cutting skills and writing skills.  I’ve made a promise that Parker will be able to write his name and do other kinds of simple writing.  It’s a HUGE promise.  One that I think our current OT believes to be impossible.

Watch me and Parker prove her wrong.

Interestingly, the usual math and reading stuff is the easiest for me to accomplish.  I understand how to break these subjects down and present them in a way that Parker is able to conquer.

We are starting to make strides in Parker’s signing again.  I was scared there for awhile, but I’m feeling more certain that he will, indeed have a way to communicate.  The plan is to get the signing in place and then, when he realizes how incredible it is to be able to communicate besides flirting,  we’ll try the AAC route again.

For others who may be thinking of homeschooling a child with special needs, I would be doing you a great disservice to say that it was easy.  If your child is healthy and doesn’t have the speech, gross and fine motor skills that Parker has, it might be easier.

It’s actually a full time job, especially as Parker gets older.  I’m not sure I could do it if I had younger kids too.

A little boy with Down syndrome and his Grandmother

Nobody said this homeschooling a medically fragile child with special needs would be easy.  It will be worth it.  But you’ve got to be willing to put the effort in.

I’m not going to give up on my dream of a way opening up to provide Parker with the therapies he needs.

Miracles happen every day.  Opportunities are  constantly making themselves available.

Come on Opportunity.  Parker’s ready.  So is his Mama.

 

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. Michele Smith says:

    Tammy,

    Miracles happen through homeschooling. God hand-picked you out of gazillions of options to be Parker’s teacher/mentor/prime educator. His power and your consecration of your talents and sacrifices and the love and relationship you two share are an unbeatable combination. Praying for you and Parker.

    Here is something I found which I don’t know whether it would be of use or not, and likely you are already aware of it…but for what it’s worth…

    http://www.schools.utah.gov/sars/Quick-Links/Carson-Smith-Scholarship.aspx

  2. Miss Linda says:

    Have him do the vertical line first, then the horizontal line going left to right, then a slant left and a slant right then a circle starting at the top going counter clockwise. That will cover all the alphabet strokes. Be sure you have clear defining beginning and ending spots.
    Miss Linda

  3. Jamie says:

    I’m so happy I found a blog about homeschooling special needs children.
    thank you
    This is our first year homeschooling our very dependent special needs daughter.

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