We took Parker to school last week. Not every day and not all day long. Nope. A couple of days and a couple of hours per day. By Friday Parker was sick. By Sunday he was sicker. When my medically fragile kid gets sick during the healthy season, I know that homeschooling my child with special needs is the right choice to make.
Making the choice is pretty easy.
Making sure I have what it takes to provide Parker with what he needs to meet his highest potential is an entirely different thing.
I totally screwed up in the follow up and being on task with Parker’s fine motor skills. I have a teeny window of time to try to make this up.
If Parker could go to school he would get one on one Occupational Therapy, group OT therapy, and help from a certified teacher in special education.
How do I counter that?
At most Parker will receive OT twice a month. On the positive side, our school district, because of all the cuts being made in special education due to the sequester, has decided it’s cheaper to hire a new OT than have Parker’s current OT, and the other district OTs travel out of their territories.
Starting in July we’ll be able to take Parker up to receive a little bit of help in the areas of OT and PT from Primary Children’s rehab. I know he will at least receive 10 sessions of each.
It’s something. And I’m thankful for what little bit I can provide for this Hero of ours.
We were contacted about the possibility of Parker being gifted an adaptive bike. It’s still in the hopeful stages. I do know that an adaptive bike will provide gross motor therapy in a fun, engaging way.
From now until my Mom’s next knee surgery in October, she will be working with Parker on his cutting skills and writing skills. I’ve made a promise that Parker will be able to write his name and do other kinds of simple writing. It’s a HUGE promise. One that I think our current OT believes to be impossible.
Watch me and Parker prove her wrong.
Interestingly, the usual math and reading stuff is the easiest for me to accomplish. I understand how to break these subjects down and present them in a way that Parker is able to conquer.
We are starting to make strides in Parker’s signing again. I was scared there for awhile, but I’m feeling more certain that he will, indeed have a way to communicate. The plan is to get the signing in place and then, when he realizes how incredible it is to be able to communicate besides flirting, we’ll try the AAC route again.
For others who may be thinking of homeschooling a child with special needs, I would be doing you a great disservice to say that it was easy. If your child is healthy and doesn’t have the speech, gross and fine motor skills that Parker has, it might be easier.
It’s actually a full time job, especially as Parker gets older. I’m not sure I could do it if I had younger kids too.
Nobody said this homeschooling a medically fragile child with special needs would be easy. It will be worth it. But you’ve got to be willing to put the effort in.
I’m not going to give up on my dream of a way opening up to provide Parker with the therapies he needs.
Miracles happen every day. Opportunities are constantly making themselves available.
Come on Opportunity. Parker’s ready. So is his Mama.