Have you have stopped and thought: Man, I really wish someone would invent something that would make (fill in the blank) easier.
For example. Parker now sports a cuffed trachs.
Cuffed trachs are a pain in the a@@. At the bottom of the trach there is a little deflated balloon. That deflated balloon has several edges that can cause some damage if a kid happens to yank that sucker out.
Damage that now has us doing trach cares 3x a day and using an ointment to clear up the inflammation/infection from that cuffed part. Not to mention all the granulation tissue that has grown since we started used the cuffed trach.
My idea? A cuffed trach where the ‘cuff’ deflated INTO the trach cannula leaving no sharp edges to cause potential damage.
Trach changes around here used to be a no big deal, one person by themselves gig. Not any more.
Or how about (CPT vests) or as we call them ‘shaker vests’ with velcro that lasts longer than 6 months. Seriously. That velcro gets weak and my kid can climb out of that sucker in a heart beat even if it is totally inflated and buckled on.
Today I actually used clothespins to keep Parker’s vest together.
And finally……how about a g-beck that a kid can’t yank off THOUSANDS of times a day? Men have walked on the moon and here I am putting Parker’s g-beck back on his trach nose every other second.
Why, lookee there. Somebody’s pulled off his gi-beck again.
So, what about you”
What grand invention do you wish someone would come up with that would make YOUR life as a parent of a kid with special needs easier?
Cause I know I’m not the only one who spends a good portion of her life cussing stuff like this.
Am I? Naw, I couldn’t be.
Leave your nemesis along with an idea of how to thwart it in the comments section. Who knows, maybe somebody has already figured out a way around you pita and they’ll share their ideas with you!