Getting My Panic On

Parker’s cardiologist just called.  Yup.  Eight o’clock at night and this amazing man still takes the time to call.

He needed to update us on the results of Parker’s latest blood draws.

The update wasn’t so great.

For the third month in a row Parker’s BNP has gone up.  The BNP is  a pretty good indicator as to wheter his Pulmonary Hypertension levels are going up too.

His liver enzymes are up.  Due most likely to the medication Parker needs for his Pulmonary Hypertension.

Yesterday we received the results from Parker’s last sleep study.

Seems like Parker has a very bad air leak around his trach.  His trach needs to be enlarged and it needs to be changed out to what is called a cuffable trach.

Parker’s vent settings also need to be adjusted.  He simply isn’t getting enough oxygen at night.

That familiar feeling of fear has begun to set in again.  Pulmonary Hypertension takes lives.  Parker’s battle with this horrible disease has just been bumped up a notch.   Or 50.

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Parker’s Pulmonary Hypertension: The Beginning

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