Parker adores going outside.   Often I’ll bundle him up and take him on our front porch to hang out in the raindrops for a few minutes or give him a lesson on how to catch snowflakes in his mouth.

The weather right now is too cold to keep him outside long.  Cold air, chronic lung disease and trachs don’t mix well.

We raised up the blinds on the window that leads outside from our dining room to make a sunny spot for Parker to keep tabs on all the excitement that goes on in our backyard.


Okay. Maybe excitement is a bit of an exaggeration.  But I do toss out handfulls of birdseed to attract the birds for Parker’s veiwing enjoyment.

Reed and I dream about creating a place wonder and magic for our Brave Hero.  A swingset and jungle gym made to fit his unique needs.  A child’s garden for butterfly watching, and green bean tee-pee growing.

One day this kid is going to be healthy enough to run and play and be a boy.  Our faith that this blessing will take place is strong.


Until then Parker will keep watch at the back door.  A place for us to dream together.

And for those of you who have been following our story of Medicaid cuts and the state of Utah go and check out this article that ran in the Trib.

We’re still banging our drum. I’ve left a voice message for Rep. Dougall inviting him to our home to meet Parker. I’ve also touched base with Sam Penrod from KSL news.

There is a meeting on Wednesday between lawmakers and special needs advocates, but I won’t be able to attend. Reed’s sweet Dad isn’t expected to be with us much past the next few days and Reed and my children are spending as much time with him as possible. I’m trying to support Reed by staying and caring for Parker so he can be with his much loved Dad.


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