Dear Representative John Dougall

by Tammy & Parker on January 25, 2009

You won’t remember who I am. We  met a few summers ago when you were trying to smooze my husband, Reed out of his vote.

Our introduction took place at a fundraiser for  my son, Parker.   Parker was born six weeks early with chronic lung disease, pulmonary hypertension, a tethered spinal cord, an imperforate anus, and  an extra chromosome.

Parker has undergone many surgeries, including critical intestinal surgery,  a tracheotomy, g-tube placement and just this month, surgery to correct a life threatening bowel adhesion.  He’s spent more time in the hospital than out of it.

I remember feeling  frustrated with you that hot August day. We had worked so very hard putting this fundraiser together and yet you kept my husband tied up for over an hour talking about YOU and YOUR ideals, all in the hopes of gaining a vote.

And here we were trying to raise the funds to cover the costs of keeping our child alive.  Because Utah isn’t really known for it’s give a damn policies in that area.

So I bet you can understand our family’s dismay when we discovered  that our  state had  decided to eliminate the Disabled Tax Exemption…………..

and that this Legislation under H.B. 359 (Tax Changes) WAS SPONSORED BY YOU.

Whatta guy you are John. I imagine you celebrating  the passing of this little gem by kicking a whole bunch of cats on your way home that night. Just for good measure and all.

If memory serves me correctly, you take great issue with closed door meetings.  Even imaginary ones.  Yet you slipped this new legislation past many of us here  with little to no transparency.

Representative Dougall, did you realize that we are neighbors?  Only a brief walk separates your neighborhood from mine. Our children attend the same schools. I wonder what you teach your children in regards to those with special needs.

Do you teach them respect? Or that, in a pinch, it truly is okay to take from the weakest and most vulnerable within our society.

Especially those, like my son Parker, who literally and figuratively have no voice.

But I understand that there are others in our community that you have set your sights on.

Take for example the legislation you wanted to impose forcing those seniors now receiving in home health care to be admitted into full care facilities.

Until someone pointed out to you that full care facilities would cost tax payers much, much more than in home health care.

Not only does your lack of compassion astound me, but the depth of your ignorance as well.

Just a few days ago, Medicaid was on the chopping block here in the state of Utah. Legislative staff, such as yourself, decided you knew more about life with special needs than those of us actually living it, and ergo had the wisdom to take the ax to all the fat contained within the Medicaid budget.

Except, in reality there wasn’t any fat, was there. It took special needs advocates and parents to come up with the idea of tapping into the rainy day fund to continue to fund Medicaid until the state stimulus money from the feds could replace the loan. An idea that had totally blown over the collective intellect of our state legislature.

Your voting record clearly shows more concerns with new roads in the state of Utah than any quality of life for those with special needs.  But the conflict of interests between your voting record and your personally owned business ventures is a subject for another time.

But this state legislature voted to hold itself blameless for any conflict of interests between their voting records and their personal business ventures didn’t they John.  Why should you be held to the confines of ethics?

And now there is a proposed plan to take back Medicaid funding from families making 75% over the poverty limits.

Or even cut it out altogether.  The same way you attempted to do away with all of the autistic preschools in the state.  Instead, you did away with programs to help elderly disabled persons.

This stunning proposal targets middle class families such as ours, and will add to the ranks of families in this state losing their homes due to astronomical medical bills.

Bravo, John.

Representative Dougall, it won’t be long until our private insurance for Parker maxes out. And while we now qualify for the Travis C. Waiver, Medicaid doesn’t cover the $2,000 dollar a month drug that my son needs to live, or many other things necessary for Parker’s health.

And if you go ahead with the proposed cuts in Medicaid, we won’t even have that.  Because the state of Utah is one of the few states that doesn’t allow a household to subtract out of pocket medical bills before reporting their net income.  It is only one of two states that refuse to float bonds in order to fully fund Medicaid.

Did you realize that 20,000 people die each year unnecessarily because of no insurance coverage?

When the time comes that Parker no longer has private insurance,   fund raising efforts to meet Parker’s medical needs will be greater than ever.

If by chance you happen to come across one of those fund raising efforts in the future, may I make a request?

Walk away. Just simply walk away.

Because with neighbors like you, who needs enemies?

Just as a courtesy warning John,  I will be taking notes of each and every act you make as my elected representation to the state government.   It will be my personal pleasure to lead the pack that makes sure you never see a winning election again.

Oh, and before I forget, when exactly was your last self appointed pay raise?

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Tammy and Parker

{ 2 trackbacks }

Seriously Representative Dougall??? | Little Miss Hannah
January 25, 2009 at 9:59 pm
Saving Medicaid
January 28, 2009 at 1:28 pm

{ 20 comments… read them below or add one }

Heidi @ GGIP January 25, 2009 at 4:03 pm

Bravo, Tammy! I hope many of the other concerned citizens in Utah also send a note to their representatives.

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Cammie Heflin January 25, 2009 at 4:09 pm

This is a wonderful letter! Good job!

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Krista January 25, 2009 at 4:40 pm

Bravo to you Tammy! And what a slimeball. I hope you send a copy of this letter to him and all his cohorts.
It’s so sad that people think it’s okay just because the people they’re taking from can’t defend themselves. That’s the worst character trait ever. :(

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Jen January 25, 2009 at 5:09 pm

Great job!!

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Terri Grabb January 25, 2009 at 9:20 pm

I love the letter Tammy,

Did you by chance catch what has been happening on this blog and the national coverage this family has been getting over this issue.

http://abcnews.go.com/US/Economy/story?id=6710328&page=1

http://www.kmtv.com/Global/story.asp?S=9705606

http://www.kktv.com/home/headlines/37856789.html#comments

http://www.gazette.com/articles/monument_46505___article.html/html_toddler.html

This little sweet heart has spent a year in the hospital she had a transplant and has maxed out her private insurance and has been dropped by her state for medicaid. Thankfully many family members and friends have made a huge fit and has made a great statement in raising awareness in the medical fiasco that is occuring for many of our children.

It is a real issue and needs to be addressed.

Terri

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Sue January 25, 2009 at 9:54 pm

Great venting ! I hope that you posted it.

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Carrie January 25, 2009 at 10:09 pm

Tammy, I’m just so pissed off for you. Like you, we know we are going to be faced with a lifetime of ridiculous medical expenses for Hannah. Heck, the drug she is going to need every two weeks for the rest of her life is going to average $250,000 a year when she is an adult — and that is just the medication! That doesn’t include the other medicines, therapies, surgeries, and procedures she is going to need in her lifetime, especially one that may be limited due to her disease.

Again, like you, we are just a middle class family. However, we don’t qualify for any government assistance because of our income. Yet a lot of our income is now going to pay for Hannah’s medical bills.

We need to rally together, all of us parents with children with lifelong medical requirements, and brainstorm to make changes.

Sorry for the rant. Your post just really got me angry because it is just wrong that people are fighting against families like ours. I just want to fight back, you know?

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Carrie January 25, 2009 at 10:10 pm

Oh yeah, I ranted on my blog about him as well…
http://littlemisshannah.com/2009/01/seriously-representative-dougall/

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Michelle January 26, 2009 at 12:03 pm

What a putz. These people have no clue but always claim that they do.

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IRENE January 26, 2009 at 2:27 pm

good for you ..hope many more parents will send a letter just like you…
we all should get this guy out of office asap…

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Chris Hempel January 26, 2009 at 8:31 pm

This makes me sick Tammy! You need to go to your local media with this story!

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Nicole January 26, 2009 at 11:54 pm

You Rock Tammy!

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Kyla January 27, 2009 at 12:40 pm

Unbelievable! I hope you send it.

We’ve been through the wringer with insurance and I know first hand how scary it is to be without it when you have a kid with medical needs.

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JULIE PRICE January 27, 2009 at 11:38 pm

You should run for office!

Your comment on my blog – yes Katelyn looks very much like me . . . poor girl! ha ha

The kids all enjoyed the chili tonight and had happy faces and tummies!

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Mozi Esme's Mommy January 28, 2009 at 4:28 am

Ouch! I hope the right people read this and get things changed…

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Michele K January 28, 2009 at 11:27 am

Beautifully written, I’m appalled at his track record & this is coming from someone who lives in Chicago, IL!!

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Karen (Pediascribe) January 29, 2009 at 8:51 am

Are you sending this? Or was this just a vent? Maybe these elected officials need to hear things for how they are. The frustration definitely shines through in this letter!

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anonymous January 30, 2009 at 6:44 pm

Dear God, I hope he is not a republican. I hope this makes your local paper. If it hasn’t then perhaps you should send it in as a letter to the editor. Bravo.

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Sarah January 30, 2009 at 7:35 pm

Seriously glad we no longer live in Utah. No talk of medicaid budget slashes where I live, In fact talks of giving them more money.

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Andrew July 14, 2010 at 11:32 am

Tammy, we don’t know each other, but I was directed to your page this morning after my letter to The Salt Lake Tribune’s editor ran in today’s edition.

I don’t know where you stand as it relates to disabilities director Alan Ormsby. But I can promise you this — not only has he experienced the frustration and ideological insanity from the cut-public-services-at-all-costs Representative Dougall, but this weekend he also suffered the unexpected cheap shot from Mr. Dougall who was quoted as saying, “It almost looks like from my perspective that Mr. Ormsby is going out of his way to make those cuts more egregious on recipients…”.

Dougall’s duplicity and willingness to misdirect public opinion is without compare. Alan is my friend. I know his heart. I know how hard the last 12-24 months have been, particularly in the fight to maintain funding for the disabled community. And the only people I fear who have suffered more than he has trying to make Dougall’s constantly shrinking math work are those who need services the most.

If you would be interested in sharing your story, there is a place you can post messages below the Tribune letter to the editor at http://www.sltrib.com/sltrib/opinion/49914715-82/dougall-disabled-director-ormsby.html.csp.

I’m touched by your experiences as the parent of a special-needs child, and wish you and Parker nothing but the best. If you have any questions or would like more information, please don’t hesitate to email me.

Sincerely,
Andrew Graft

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