Come Tuesday….

He’s starting to feel better.

Better is good.

Because Parker’s SED rate was twice what it should be he’ll still be heading in for a colonoscopy and endoscopy this Tuesday. While he’s there they are going to go ahead with the BRAVO too.

2012-06-28 07.57.34

A high SED rate is an indicator of inflammation and infection somewhere in Parker’s body. We need to find out where and what.

2012-06-28 07.57.37

The BRAVO will let us know if we can start pulling back on Parker’s PPIs.

We were hoping to get the ENT and Dental together all in one surgery, but that’s not going to work out.

PCMC wanted us to agree to having a Fellow perform these procedures with an Attending present. With Parker’s history I requested that only the Attending to any procedures. The Attending is someone familiar with Parker and I do feel good about that.

2012-06-28 07.57.39

Hopefully we can get everything fine tuned so that this winter will be a healthy one.


2012-06-28 07.58.04

It’s time for a few more smiles around here.

Lots more.

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.


  1. I’m so happy that you’re surrounded by smiles again! It’s certainly time!!! I love his cute face!!!

  2. Parker’s smiles are so touching.

    Whenever I’m at the hospital (like I am now w my mom) I think of you and Parker. I honestly can’t imagine how you all handle so much time there. I think about you and pray for you all the time. I hope these procedures help Parker have a healthier winter.

  3. cutest pics— I love the one of him with his hands over his mouth laughing- brings tears of joy to my eyes. Hope you keep getting good news – prayers and hugs always.

  4. What great pictures. Especially the last one. Hoping for a lot more smiles for you guys.

  5. I love these photos so much. They make me smile. :)

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