I’ll take a trach change to go, please.
There was a time when a trach change was no big deal around these parts. Then in April Parker underwent a trach stoma revision and tracheostomy changes became a really …
Category: Frequent Flyin’ ar the PCMC
Update from a Down syndrome Mama
The older I get, the faster life zips by. I think I spent half my life hoping time move quicker and now I’m spending it wishing it would slow …
I can’t smell skunk, but apparently I can smell Klebsiella Pneumoniae in my son’s pee.
I can’t smell skunk. Seriously. Oh, if we were to run over one and it stuck to the bottom of our car I might be able to make the …
The Great Hearing Aid Chase
A year and a half ago Parker had a sedated ABR. The news was surprising at best. Parker’s hearing in his right ear was severely damaged. His left ear …
Alternative Funding Sources for Special Needs
Let’s face it. Kids with special needs are expensive. It doesn’t matter if you have insurance or not. Cause you can pretty much bet that there’s going to be …
Living by the pulse oximeter
Several times a day and all night long Parker is hooked up to his pulse oximeter. This lets us know how high his oxygen concentrations are (needs to be …