Asthma and the medically fragile kid with special needs.

It starts out slowly.  Instead of staying within it’s normal parameters it begins to cycle.  From the 60′s to the 70′s.  That’s all it takes to get my attention.

Parker’s sleeping heart rate always foreshadows an upcoming concern.

If we’re lucky it will return to it’s normal and I can lower my terror alert down to zero.

If we’re not lucky it will keep heading up, staying in the high 90′s and low 100′s.   That’s when the first call to the Pedi goes in.  And the first invitation to bring Parker in to be seen goes out.

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It’s important to make sure that the elevated heart rate isn’t due to an infection of some kind.  That was ruled out yesterday and attention was turned to Parker’s asthma.

I spend so much time worrying about the PH that I forget that Parker has asthma.  He also has a history of his asthma being triggered by seasonal allergies.  And with all the rain we received this year, allergies are at epic proportions.  It also didn’t help that our backdoor neighbors decided to cut down all the trees that separated our two lots.  The merging of chainsaws and tree trunks left dust two inches thick on everything.

With the weather having been so moderate we were keeping the windows open to lure the breeze into our home instead of turning on the air conditioner which really raises the electricity bill around here.

Not the best choice for a kid with allergy sensitive asthma.

So, the windows have been closed.  I stayed up last night cleaning blinds.   I’ll be washing curtains today.  Everything and anything to make sure the inside of our home will be less likely to trigger asthma symptoms.

We are doubling the inhaled steroids and increasing the vest treatments.  This morning we could hear the wheezing in Parky’s lungs.  And, of course, he has an Echo on Monday and an upcoming cath in July.

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One thing’s for sure. Life is never boring at our house…

Do any of your have kids with asthma?  Would you mind telling me about your experiences?  Things you’ve done to help make it easier for your child?

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. Tammy we deal with major asthma issues around here. We use air purifiers, no open windows, and Junior sometimes even wears a mask when we go outside. During bad episodes we put on his bipap and run his nebs through that. Allergy season is no fun.
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  2. Heidi,

    I think I am going to have to start watching the pollen counts, etc. We have a super duper filter on the AC, and will be keeping those windows shut too.

    Do you have more than one air purifier?

  3. Got to remember when you clean the filters, that you need to be careful not to release the dust in the house in the process.

    Of course, if they’re disposable filters, that’s a different matter.

  4. Hannah also has a trach and asthma but she gets so many neb treatments all the time that she rarely has a problem…she gets at least 9 treatments in 24 hours
    joan

  5. Do you all use a nebulizer for treatments? They recently took my son off all those treatments and started using 2 different inhalers, worked wonders!

  6. Andrew, our nine year old, who has autism and epilepsy, was shockingly diagnosed with cystic fibrosis last fall.

    Though the prognosis is positive for now, a cough will never sound the same, will never hold the same meaning for me, ever again.

    We are getting rid of our carpeting, and along with breathing treatments and percussion exercises, we look at everything as a potential threat.

    Living in SoCal, where the air quality sucks at best, we try to spend time along the shores of our local beaches, and this summer, in the peaks of our nearby mountains, breathing deeply and with purpose as we try to navigate this new hurdle in Andrew’s life.

    You sound like an amazing mom, with a little boy who is lucky to have you. And it does not surprise me that you would stay up all night cleaning the blinds.

    You’ve got one more family praying for you and your little guy.

  7. My 7 year old son has asthma too. He was diagnosed at 8 months old and I cearly remember listening to him breathe in my sleep. I kept him right next to my bed and any gasp had me springing up.

    What we did was get rid of all our carpet, invest in the best allergen-removing air conditioner filter we could get (we live in FL), & get dust mite repelling mattress & pillow covers. He uses 2 inhalers now – 1 is Flovent for daily use and 1 is Albuterol for when he needs an extra boost. We also watch the allergies and now take only a prescription liquid med and/or OTC allergy meds (we used to take Singulair.)

    By staying on top of it with the Dr. appts, the meds and the things I mentioned above, my little guy has done very well. I have not had to rush off to the hospital for probably 5 years now.

    Hope this helps!