All the proof in God I need is in this kid

 

 

Years ago I received a Christmas card from a friend who had a son with Down syndrome.  In that card she wrote, “If there was a cure for Down syndrome we’d pour it down the drain.”

Pretty amazing considering when this friend’s little boy was born she considered her life to be over.

I’m often asked how I would feel if they could ‘cure’ Down syndrome.

Why, I think?  Why would I change this kid of mine who has changed my life for the better in so very many ways?

Now, would I cure the Pulmonary Hypertension?  In the blink of an eye, baby. Healthy is something I absolutely  wish for this bravest of Heroes.

 

The extra chromosome  is not something I feel a need to wish a way.

I worry about money.  I worry about health care for Parker.  I worry about how the world will treat him.

But Parker himself?  A gift.  A blessing.  A joy.

 

I believe that God sent this kid to me to give me something to fight for, to show me there is all kinds of love in the world.  Parker gives me hope and brings us  joy.  All the proof in God I need is in this kid.  He reminds me that miracles do exist.  He fills a space in my heart that I didn’t know was even there.  Every day he inspires me to be a better person.

How could I ever want to wish away that extra chromosome?

  It part of what makes him perfect.

About Tammy and Parker

Special Needs Blogger, and homeschooling Mom, heavily involved in advocacy for all kids with special needs in Utah.

Comments

  1. I admire and respect you a great deal, but I feel differently. I think Em would still be Em, without her extra chromosome. She would be Em who doesn’t have to struggle twice as hard, get left out by peers or have such an uncertain future. But she would be just as awesome and amazing!

    • CJ, there really isn’t a right or wrong answer here…….just how each of us feel. I totally respect your feelings on this. I sometimes wonder if Parker didn’t fight the Pulmonary Hypertension Monster if I too would feel differently. Thank you for taking the time to leave a comment and share your heart!

      • You are very right. Em doesn’t have the medical issues Parker does. I guess part of my opinion stems from whether or not I believe taking away Down syndrome would ALSO remove her Celiac Disease, Hypothyroidism and heart malformation.

        But I know it wouldn’t take her sassiness or stubborness!

  2. I cant believe how big Parker is!!!! He looks wonderful Tanny!! Please give him big hugs from me. Thank you soooo much for visiting me!
    Love to all,
    Amy