The First Swing of Spring

by Tammy & Parker on March 10, 2010

It was almost warm enough to swing last week.

In swinging, as in horseshoes, almost is close enough.


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Is there something your kid loves, an activity that makes their heart sing?


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And for those of you who may be interested, Parker weighed in at an all time high of 30.25 lbs yesterday.


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Must be from all the joy that fills this kid’s soul when he gets to swing.

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Tammy and Parker

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What happens next?

by Tammy & Parker on March 9, 2010

While I wish I was one of those Moms who could stand proud and exclaim,

“After declining any and all pain medication I not only assisted in the removal of the vast majority of my girly gadgets but ran a 10 mile marathon immediately after.”

I am so not that girl.

If truth be told I’m the girl that insisted on an epidural BEFORE the first contraction struck.

Now ya know.

So, while I’m sitting around waiting until it is finally time to take that next damn pain pill, you can read a guest post from my friend, Astacia, who writes one great blog at Mamikaze.com She is amazing and I know you will love her as much as I do.

_______________________

young girl with cerebral palsy in preschool with stampsWe always knew that our daughter, “Bear,” would need special care. She spent 14 days in the NICU as a full-term baby. When she was discharged, the NP on duty told us in her kindest way;

“try not to expect much.”

We’ve been through the gamut of specialists. At one time, she was seen in the Neurology, Neurosurgery, Gastroenterology, Opthamology, and Orthpedics every 2-3 months. Add in PT and OT and we became seasoned veterans of the patient care world before her second birthday.

She graduated from PT last year. No more time-wasting appointments with the nutritionist at the GI clinic. We’ve moved from the Opthamologist to the Optometrist. She is down to yearly check-ups with Neurosurg and Ortho. I received a major surprise a couple of weeks back when she was moved to consult with Neuro.

After five years of keeping tabs on referrals, tests and checkups, my calendar is feeling neglected. The “Dr.” section of my address book is collecting dust. The only active file is for IEPs.

I feel lost.

Almost unnecessary.

How about you?

Have you ever thought of the future when all the appointments, referrals, tests and checkups might come to an end?

Astacia’s blog is mamikaze

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In Which I Plead For Your Ideas

March 8, 2010

He’ll match them.
He’ll identify them.
He’ll sort them.
He’ll stack them.

But for the life of me I can’t get this kid to sign them.

The tension mounts and I resort to pleading.
Parker’s will is always the last one standing.

We’re trying to get Parker to sign his colors.

It’s the last item to pass off his IEP [...]

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Not in a Twilight Kind of Way

March 7, 2010

I went in for some surgery last week.
I figured it would take me a few days but that I would be back up and running lickety split.
Does anyone even say lickety split anymore?
Must be the drugs.
Had a couple of things happen that weren’t on the original game plan.
Even talked my doctor out of a blood [...]

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The Language of Support: Special Needs Style

March 3, 2010

Support is such an important thing in the life of a family parenting a child with special needs.  Many of us find ourselves feeling very alone and wondering if anyone else out there feels the way they do.
You very quickly discover who your true friends are.   I’ve mentioned before one of my then closest friends [...]

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Spread the Word to End the Word

March 2, 2010

I know I’m preaching to the choir here, but I think this campaign rocks.

What about you? Have you taken the pledge?
Because together we can make a difference.
So don’t forget to ask your friends and family members to take the pledge too.  Remind them the hurt this word causes.  Ask them to join us in [...]

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